You Are Not Alone

If you have found your way to this site because you suspect that the symptoms you are experiencing may be due to anemia, then please know that you are not alone. I've been in your shoes several times before, searching the web, trying to piece together my problems -- extreme fatigue, racing heart, shortness of breath, feeling cold all of the time, repeated illnesses – and trying to make sense of it all. Was I sick? Was I out of shape? Was I just getting older? Was it possible that anemia…a diagnosis I had basically ignored my entire life…could be making me feel this way?

Like many of you, I was diagnosed with anemia when I was a teenager, but no one ever explained to me the seriousness of this iron disorder. I was never told by a physician nor came across any educational materials alerting me to the dangers of untreated anemia – for example, the very real chance of having a heart attack. I look back now and realize that many of the things that I have suffered with throughout my adult life – fatigue, foggy thinking, poor memory, joint pain, headaches – can be attributed to my anemia.

However, when I was researching my symptoms in 2011, I never bothered to read about anemia. My understanding of anemia was limited to the idea that it might cause fatigue and prevented me from donating blood. For me, the thing that finally clicked was reading about Pica, which is characterized by eating non-food items such as dirt, paper, clay, sand, hair, coins…and ice. I stumbled onto this information because my husband had asked, no begged me, to stop crunching ice. It was an annoying habit that I had adopted almost fulltime. I had become practically obsessed with eating ice. I kept an iced beverage in my hand at all times, I always purchased an extra cup of ice at the drive-thru to save for later and even had crazy discussions with several of my female friends about which fast food restaurants had the best ice! As embarrassing as this is to share, I think it’s so important in case you may recognize yourself in this story. As I surfed the Web I discovered that what I had thought was just a really bad habit was actually a sign of an iron disorder! When I finally read that “eating” ice could be a sign of severe Iron Deficiency Anemia (IDA), I went on to learn about the other telltale symptoms. I was experiencing almost all of them.

Along with the ice, I was consuming large amounts of iced tea. I was definitely hooked on caffeine and in retrospect, I now know that it was the only thing that was enabling me to get going in the morning and keep moving throughout the day. However, the tea was one of the main culprits in my iron deficiency anemia. I eventually learned that the tannin in tea blocks the body’s ability to absorb iron. So any iron that I may have been ingesting through my diet (which was admittedly poor) was being block by the iron bullies – tannin in tea and coffee (and red wine), dairy products, calcium supplements and some fiber. I had never heard about this so I was completely unaware. I only discovered it when I kicked my caffeine habit, thinking the caffeine was causing my heart to race, and found that without the coffee or tea I couldn’t make it through mid-morning, much less through the day. My energy level was at zero and I felt like I was dying. Little did I know that I actually was.

I eventually found my way to The website of Iron Disorders Institute (IDI) provided the answers that motivated me to get to the doctor – and fast! My husband practically carried me to one of those 24-hour medical clinics and we discovered that my hemoglobin had hit rock-bottom. Instead of being in the healthy range of 12-15, mine was a mere 6. The next day, I called for an urgent appointment with a hematologist and he did further testing to check my serum ferritin (iron) and other crucial markers. Low hemoglobin alone is an indicator of a problem, but let me caution you that you MUST also know your ferritin level before you start any type of iron supplementation. Certain conditions and infections can cause your hemoglobin to drop, but your iron stores could in fact still be very high. Taking iron when you already have iron overload can be extremely dangerous and even fatal.

I saw my gynecologist who, based on further testing and my history, confirmed that my anemia was due to heavy menstrual blood loss and a possible underlying bleeding disorder. With all of this information, my hematologist ordered a series of IV Iron Infusions at an infusion lab at a local cancer center. I looked around and gave thanks that I was not there for chemotherapy and felt foolish that I had allowed this to happen. I vowed to try to educate and inform my family, friends and anyone who would listen about the dangers of IDA. I decided to make it my priority and mission to find new ways to improve my diet and lifestyle to avoid another scare in the future, and hopefully help other women along the way. I just wasn’t sure how to go about doing that.

That was when I made the stunning discovery that Iron Disorders Institute is headquartered in the same city where I live! Stranger still, the Executive Director Cheryl Garrison and I share a mutual friend who suggested that I contact Cheryl for iron information. Our first meeting for morning coffee turned into lunch... and a six-hour discussion. I was amazed at the information she shared with me and realized how very NOT alone I was! The statistics about IDA are staggering – and I immediately felt a calling to help her spread awareness about the untold dangers of the disorder. Cheryl and I continued to meet on a regular basis and plans started to formulate. Eventually, we knew that we needed a “sister site” for, something that was tailored specifically to the unique needs of those individuals living with IDA. That’s when began to take shape.

As a daughter, wife and mother of two busy boys, I know how Iron Deficiency Anemia can slowly creep up on you, before you even realize what's happening. Women, especially those of us who are moms, are so busy running around taking care of everyone and everything else in our lives that we all too often neglect ourselves. It usually takes a health crisis to get our attention! We don’t have time to read lengthy clinical studies or sift through tons of generic information. We need the dos and don’ts and some helpful reminders along the way. Keep it simple. Right?

So that’s our plan for It will serve as a place of education, support and motivation. As you give us your input, we will continue to adapt the site to further reflect your needs. You can trust the information that you find on our site. It is backed up by a long history and a distinguished IDI Medical and Scientific Advisory Board consisting of world-renowned medical professionals, scientists and leaders in the field of iron disorders. We also have a very distinguished Board of Directors who help inform and guide the decisions we make as an organization.

I'm not a doctor (although I am a certified iron educator) but I know low-iron and just how awful it can make you feel. I also know how excited I am to have this opportunity to help others in this journey. So please remember that you are not alone.

I hope that you will find what you’re looking for on our site. If you have something to add or me! Thanks for visiting, stay healthy and GET YOUR IRON UP!

~ Ronnetta Griffin

Founder, Get Your Iron Up

Certified Iron Educator

Board of Directors, Iron Disorders Institute 


The archived comments shown below were copied from the original version of my website and pasted here for your information.


Tauriello wrote:

Hi, has anyone ever felt so weak and dizzy that they became numb and almost felt like they were about to uncontrollably passout? This is veryy scary when this happens, it comes
Out of nowhere and it takes a while to snap out of it. This has happened to me
Several times and I do have low iron and am slightly anemic...

Thu, March 14, 2013 @ 12:56 PM

sharon brown wrote:

Hi, I feel that way at times and it's pretty scary. I had to be transfused a couple of times. My biggest challenge is keeping up with medications. Ferrous sulfate makes me nauseous and sick. I've tried Floradex etc. My diet is okay. I feel hot and sweaty throughout the day. This feeling last for about 1 minutes then disappears. In conclusion, It's good to know that there are people out there who is experiencing anemia in some kind of way. Much success to you.

Wed, March 27, 2013 @ 10:24 AM

Linda Matthews wrote:

I have found the best way to deal with anemia is to take spirulina. Apparently it is loaded with iron but the iron is surrounded by a ring of copper molecules so it does not raise your iron level but provides iron for blood manufacture, especially once it goes down during phlebotomy. My doctor likes my iron levels extremely low and I take this, feel better and he is amazed at my counts. He's actually asked, "How did you do this!?" It's also a blood purifier so it helps the liver (which is prone to damage) to remove toxins. I don't know if anyone has actually studied this, but I have the double gene and it works for me.

Thu, April 11, 2013 @ 12:45 PM

nancy mclean wrote:

im completely overwhelmed by the last few days. ive been off my feet since wed, todays sat. I have a ferritin levels of 4 and a haemoglobin level of 98! im at my wits end. I have sore legs and arms, pins and needles and am craving ice lollies and I mean up to 10 a day. I am so fatigued and it hits me like wall and I lose the complete use of my legs. Ive had some horrible surgery snd a lot on my bowel and have real absorption problems. my colorectal surgeon has twice said I can have iron infusions then bottled it as he says it might do more harm than good. Im at my wits end, my hearts racing all the time, im breathless and im convince im going to pass out! Does anyone else have the same problems or am I overreacting...!!

Sat, April 13, 2013 @ 3:02 PM

Ronnetta wrote:


I'm so sorry to hear that you are feeling so awful!! I have forwarded your comment to our Executive Director and I will be sure to share any advice that she may have for you just as soon as possible.

Ronnetta Griffin

Sun, April 14, 2013 @ 3:59 PM

Ronnetta wrote:


I'm so sorry to hear that you are feeling so awful!! I have forwarded your comment to our Executive Director and I will be sure to share any advice that she may have for you just as soon as possible.

Ronnetta Griffin

Sun, April 14, 2013 @ 3:59 PM

Liz J.J C wrote:

My Ferritin level is 3%, currently taking 650 ML of Iron and drinking spinach drinks. It is driving me crazy as i want to get up and run. Have a normal life but i am drained and nausea's. Can anyone tell me how soon will I start feeling better? I was schedule to do the Portland to Coast race in August and not sure if i will be ready by then. Should I try to continue walking 6 miles a day, or will this make my condition worse. Not that i have the energy for it but i don't want to let my team down.

Mon, July 8, 2013 @ 9:35 PM

Janine wrote:

Hi! I have been iron deficient the past 6 month. My iron level was 12 a few months ago which is low but not something to worry about.I am always tired,out of breath and my heart beats so fast.I took iron supplements for 3months and my iron actually went lower to 11. I dont know what to do,docters are pretty useless. With my heart beating so fast had a panic attack today. 4days ago I had bronchial spasm.Sick every month! What can I do??Any help

Thu, September 5, 2013 @ 12:42 PM

Amanda wrote:

I spent the whole weekend looking up information on Iron Deficiency and find this website to be very well thought out with passion. I feel validated and less alone reading about some of these symptoms. I have been chronically loosing hair for three years. I begged for answers from my family doctor, and was referred to two different dermatologists. The common blood deficiency was low iron, and was told that all of my other results were normal. I have spent many nights and days crying in the past at the large amounts of hair loss I was experiencing. I stopped crying after a year because I felt powerless with no clear direction of diagnosis. I carried on with my life keeping busy, working, working out, and trying different foods to increase my iron. Three years later and my hair continues to fall out so easily it would shock you. I don't even want to wash or touch it. NO WOMAN WANTS TO LOOSE HER HAIR! The past few days I experienced for the first time the racing heart, shortness of breath, and lack of motivation to hit the gym. No one understands unless they experienced it. 

I feel that my self esteem has hit a severe low just like my iron. It is hard to be motivated when you have no energy and felt misguided or misunderstood. 

I fell upon this site and felt empowered to give my search for help another shot. Ronnetta shares her story and with passion to help people not feel alone and give hope. Watching Ronnetta's video on Iron Infusion intrigued my curiosity. I now live in a big city and have resources other then "dermatologists". I did not know there was a Hematologist Doctor!!! I searched on the web and found one near my house! Thank you for sharing your experiences and helping others have hope. Iron Infusion may not be what I need but a professional in Iron Diagnosis to give me guidance is what I need as a first step. I am 33 years old and I miss being assertive and energetic. Not only has my iron depleted but also my self esteem.

Thank you for being true to yourself and sharing with us unselfishely Ronnetta.

Sun, January 12, 2014 @ 8:24 PM

Jesse wrote:

I have battled Iron deficiency anemia for most of my life (36 yrs)
only in the last five years have I felt any symptoms. I guess I thought my being tired all the time was just laziness or depression. I did go through a lot of extreme dizziness and panic attacks that were passed off by doctors as panic disorder... I was medicated for that for a long time before I weaned myself off of those horrible meds and got a doctor to check my iron. I have had iron levels as low as 4 and recently I'm at a 34. I'm having heart palpitations now which is very new to me and seriously frightening... many tears have been shed as I feel like I'm going to die. my doctor told me that she heard a heart murmur (which she says is common and expected for anemia patients, but is NEWS TO ME!)I had a cardiologist look at my heart a few years ago and he said my heart was perfect. I'm not sure why I am feeling these heart related things so strongly now when in the past I didn't even know I was anemic. I'm getting a holter test done on my heart to make sure my heart is okay and have an endoscopy and colonoscopy scheduled soon to see if the underlying reason for my anemia can be found there. I'm also considering having a hysterectomy so I wont suffer with a heavy menstrual any more and hope that will be enough to let my body hold onto some iron. its astounding that no doctors through 36 years of me feeling blah checked my iron until I insisted they do it. and its astounding that even now, my doctor acts as though this is no big deal... meanwhile I'm having these heart issues that literally feel like I'm going to have a heart attack. I would love some advice and support, I'm glad to have found this site. thank you!

Wed, January 15, 2014 @ 9:03 PM


I didn't know I was anemic, but should have read the signs a long time ago! I have a polyps and fibroids, which triggered a blood test to check iron levels. I was prescribed iron tablets as results came back as 3! Even without the uterine problems I realize my iron levels have probably been quite low for a very long time. Ive been experiencing pica, but for raw cabbage, (I couldn't get enough, and was munching on the stuff continuously!) Thought it was healthy so didn't question it. I also saw a dr last year for racing heart, but it was put down to anxiety as I had been made redundant from my job. So the iron levels dropped. I feel drained, and generally awful at the moment, having only had 2 weeks of iron, so its early days!!I just wish I'd been aware of what to look for to stop it from getting this bad!

Fri, February 21, 2014 @ 2:47 AM

Gina Wilson wrote:

Ive been low on iron now for almost 1 year and I am always tired and fatigued really.
I am now having my third iron infusion and though it helps for a while it just keeps dropping down and only lasts about 3 months or not even. I do know where I am bleeding from and had numerous procedures done to stop it but all to no avail.
I feel so old and lethargic that I can hardly do anything at all without wanting to just lay down and sleep.

Wed, February 26, 2014 @ 12:13 AM

angela wrote:

I've been having a racing heart(175bpm) and they say its anemia my iron count was low and im now taking the iron pills but my racing heart scares me to death.can anyone give me any info on this?im seeing a heart doc wednesday just to be safe but im onnnly 27 in goid health but im tiredd weak and scared all the time.when will this get better??

Thu, March 27, 2014 @ 9:54 PM

Karen Swift wrote:

I am so glad I found this site... was just recently diagnosed with Iron deficiency Anemia and B12 deficiency also..I started to notice symptoms as far back as last Summer when we would go hiking, I would have to stop to breathe and let heart rate slow dowm, I just thought it was a passing fleeting thing that had to do with my age ((45)) and maybe peri menopause..Ended up in the ER a couple of times being told I was "slighty" anemic come to find out I was very anemic having a hbg of only 7.5..I was put on oral iron supplements taking only 1 a day, then 2 a day and now finally my doc has upped the dosage to 3 a day, 975 mgs of iron everyday..I am starting to feel a little better, heart rate is still kinda fast upon standing though ((the hair loss sucks too and the pale yellowy skin))..I never knew all this time that Anemia could make you feel so poorly..THis is what has been wrong with me for the last 2 years, it is gonna take awhile to get back to normal and I cannot wait until I do...Thank you so much for all the info....

Fri, March 28, 2014 @ 10:01 AM

Lisa wrote:

I'm 36 and have been anemic since I was at least 19. I'm looking for information that can explain why I'm always hot. My older sister has the same iron deficiency anemia that I have, but she's always cold. I sleep with the fewest amount of clothing possible with the AC on and am still too hot. I often find myself looking for people who are colder to cool me off. Can anyone please explain this to me?

Fri, April 18, 2014 @ 12:07 AM


all my doctor told me was I was anemic and to take iron 3 times a day nothing about my diet nothing about and vitamin C to help absorb it I have to find everything online this really sucks... I knew nothing about being anemic that I needed to stop with the coffee or the until I just read this...

Wed, May 28, 2014 @ 1:56 PM

estrella wrote:

Well since a few months I've been feeling sick, mostly near my period, when I get up I feel super dizzy, in the shower, I have been feeling bad, I won't even stand up I get sleepy all day, my hands and arms usually hurt, I've been feeling cold :( I get easy sick with common cold or flu :( I forget easy many stuff, help please :( I'm 16 turning 17 soon, I'm kind of scared

Sun, June 1, 2014 @ 9:38 AM

averdugo wrote:

i was diagnosed with this condition a few days ago. I can relate to all of the above and more the out of breath, the burning feeling in my body, hair loss, eating ice like it was a meal and lived on coffee. Today i pray that i get well for my kids. You never really value or understand how important your health is to you until your children wait up for you and see if you made it back safe from the hospital. This is unacceptable to me and very sad! I wish everyone my best wishes and prayers go out to you because I am like you always in a hurry never made time for me. Always worried about my weight and what I ate. Today I don't care all I want is to get better. 
Good luck to all of you and best wishes may all of you get better tomorrow I pray. 
I have to see an oncologist in a few weeks. I will let you all know. 

Mon, June 2, 2014 @ 8:32 PM

NixieNi wrote:

Do any of you ever experience anxiety, depression and intrusive thoughts? I experience all of this especially after a bowel movement, and coldness all over, numbness in my face and always tired and so much more.

Fri, June 20, 2014 @ 3:27 PM

Deborah wrote:

I've had anemia all my life .recently i had iron infusion . to be totally honest i feel more fatigue and sick .i don't understand how im suppose to feel after these treatments .i felt so bad i cancelled my last treatment .can you tell me why i may be feeling more fatigue after the infusion .confused i am . should there be something else i could do ?or tell my doctor

Fri, October 10, 2014 @ 10:49 AM

Katrina wrote:

I've read all of the posts but didn't find the answer to the question, "When will I feel the iron infusions working?".
My HGB was 6. Malabsorption secondary to gastric bypass surgery (which, do NOT misunderstand, I do NOT regret) was the cause for oral iron supplements no longer being effective.
Everyone's experiences really hit home for me but would someone who has had iron infusions (I had 5 over a 3 week period) share when she started feeling better and what made her realize she was?
Thank you.

Tue, October 21, 2014 @ 12:22 PM

Dennis wrote:

New to anemia. I'm a 67 yo male. Had black stools for two days, no other symptoms,,due to bleeding ulcers. Tried to walk my dogs their mile, 1/2 block later, l'm home, can't catch my breath and extremely diaphoretic. Called EMS, on way to ER, bp was 60/40. After 7 days in hospital, 7 pints of blood w/intravenous fluids, hemoglobin went from 3 to 9.5.

Home now, weak, winded and find stair climbing the hardest activity. I hear recuperation is 4 to 6 months. Is it that long?????

Tue, October 28, 2014 @ 4:45 PM

deanie wrote:

Had infusion #1 on Tuesday last week. 2nd one tomorrow. Ferric level 1.4, lowest my dr has seen in someone in a long time. Believed to be from heavy menstrual cycle. 33 years old. When will I start to feel better? I still feel awful.

Sun, November 16, 2014 @ 10:04 PM

Debbie (South Africa) wrote:

You people are so lucky to have facilities that you have over there. I was diagnosed last year Nov2014 with IDA and had approximately 20 vials of iron over two days 8 hours a time infused. I felt like a complete new person. It lasted nearly 10 months. unfortunately my specialist retired. My GP is wonderful when it comes to looking after me but his hands are tired when it comes to my medical aid (medical insurance) and I have to see a specialist to go to the infusion at his surgery which he is more than capable of doing. he sent me to another specialist who redid all the tests which as you know costs a fortune and gave me 4 pints of blood which I feel puts my life at risk (HIV) after wanting to give me more blood I refused and went home.He also gave me some mineral water with iron in to drink which I don't absorb. some doctors just don't know and want to experiment instead on dealing with the problem. we aren't doctors but we do know what works for us and well some of them just don't listen cause they think they know it all. he was only supposed to do the Venofer treatment which I find helps straight away as I do not absorb iron by diet etc.. so hopefully by new year I will have sorted out my problem with our medical aid and my GP can help me as I get as low as 3 and am now only sitting at 10.9 after 4 pints of blood. I am so glad I found your site as I didn't know what all the symtoms where and now feel a lot better knowing its not my imagination taking over its very real. I do still work in my garden etc but sit on a stool etc. walking up the stairs is a major problem. but its so nice to know there are other people out there and I am not alone in this. I am also so lucky to have a GP who understands my problem and is so supportive. your blog was very informative please keep up the good work.

Fri, January 16, 2015 @ 2:27 AM

Karen Swift wrote:

I was just diagnose with anemia AGAIN. more severe than last time. Back on iron pills 3 times a day at 325 milligrams each..These horrid symptoms of hair loss, racing heart, chronic cough and chest pain, the feeling of doom and wondering will I ever again feel normal..:-(

Mon, January 19, 2015 @ 3:37 AM

Kristen wrote:

I have to say im sorry to hear of so many people having issues with iron and such. Its awful. I go for my first infusion on Tuesday. My stores have been getting lower of the past little while. I had a surgery in December of which my pre blood work hemoglobin was 124 and iron was 20. now my hemoglobin is 114, and iron is lower now. Is it still possible to experience shortness of breath and fatigue, and hair loss with these numbers? I mean, is this because every ones body is different? Im from Canada so im not sure the lab values are the same every where. 
Thanks, Kristen

Sat, January 24, 2015 @ 11:27 PM

Cheryl Bradshaw wrote:

Thank you for your website it helped me out a lot.And I learned A lot of things I didnot know about,Iron deficiency and being a anemia iron is 6.7 and that's low.Iam support to have surgery on the with Feb,12,2015,but there my have to canceled it because of my iron.So that's why iam looking up things about low iron.I had been sick for about A year.

Thu, January 29, 2015 @ 12:25 PM

Dez wrote:

It's a blessing to find this site and hear other people's stories.
I was diagnosed with Iron Deficiency anemia about 5 months ago (though my doctor thinks I may have had it much longer), and started taking iron pills. After two months I showed very slight improvement but felt worse. After two more months and more blood work, we found that not only was I not absorbing the pill form iron at all, I also had Vitamin B deficiency anemia too! 

The symptoms have gotten so much worse that even walking down a flight of steps is incredibly difficult, and my pulse is typically around 120-130 beats per minute. My chest hurts all the time. The diagnosis has explained so much (difficulty breathing, inability to sleep well, yet so exhausted sometimes it's impossible to move, vertically splitting nails, hair breakage then hair loss, going down three foundation shades paler and pure white lips.)

The scariest part is that they do not know the cause of my anemia as the usual causes don't seem to be the issue. I go to a GI doctor soon and will have to have further tests, and I'm terrified. This seems to be the only place I can really admit that as my family is, to put it mildly, freaking out with worry. So I want to say thank you for giving us a place to discuss and vent our fears.

I had my first infusion Friday and started giving myself my daily Vitamin B shots, but as my hematologist said, those are just band aids until we find the cause of the anemia. 

I do have a question I am hoping someone can answer. Has anyone had extreme nausea after the infusions? My infusion was Friday, I had nausea off and on yesterday and almost all day today. Any advice would be greatly appreciated.

Sun, February 22, 2015 @ 9:20 PM

Zulay Mendez wrote:

Hi I'm 33 now I've been dealing with this anemia for a while now but can't get it under control I can't take iron pills I start to sweat and turn pale nauseous and cold I don't know why? If I take an iron pills I feel like I'm going to die like I have just drank a cup of poison Dr.send me to a hematologist I had 6 rounds of iron infusion I felt the same weak tired dizzy felt faint my anemia is due to my heavy menses I've had 2 surgery removing most of my ovaries left one gone chocolate cyst right one partially gone this was a few months ago tried to convince the Gynecologist to just take it all out but she didn't want to so now this time around I'm bruising a lot unexplained really mostly on my legs but on my arms too it's hard for me to breath I feel pressure kinda like someone stepping on your chest my abdomen feels like it's boiling due to my monthly cycle I can't stand my head my eyes feel dry and heavy I'm so tired even energy drinks don't help my body's warm but my feet are so ice cold I can't warm them does anyone have any advice 😔 and I'm so nauseous is it normal to hear like a noise like when you reach altitude on a plain that light headed kinda dizzy noise feeling and slow pumping through your body it's like I feel my blood trying to reach the next vein

Fri, February 27, 2015 @ 4:08 AM

JD wrote:

My ferritin level was at 23 but my doctor never pointed that out, learned it on my own thru the internet. The type of iron supplement you take matters. After supplementing with Ironsmart by Lorna Vanderhaeghe my ferritin went up to 41 within three months. My goal is to get above 70 and maybe then my hair will start to grow back, it's a very long process but I'm feeling so much better. More colour to my skin, more energy, feel warmer. Ironsmart does not cause stomach issues or constipation. I'll never stop taking it.

Sun, March 22, 2015 @ 9:23 PM

Reiny wrote:

hey!! I delt with this too; I think is one of the most horrible thing u can have; and you feel so hopeless; because it take so much time to get better; Im so thankful that Im starting to feel like my old self again
I want to share with you what I used & It took me like 3months but it depends on peaple maybe it coulb be less for u
I drunk a cup of beetroots juice everyday (better raw)and ate it in salad(too much can make u feel sick)
look the importance of beetroots they are so rich in iron & magnesium
eat much fruits everyday & vegetables like spinach and other greens
try to reduce breads in ur diet eat whole grain breads

Wed, April 1, 2015 @ 10:59 AM

Reiny wrote:

most of the time we have low magnesium which causes panic attacks because magnesium is the calming mineral & u can't test it in blood because much of it is in bones a small amount is in blood
and many foods are rich in magnesium but there foods that block it to be absorbed in the body like coffee; simple breads; 
look for importance of magnesium and lack of it U'll see
so try those things & eat healthy; don't stop when It didn't work for a week or month.
you fell so hopeless & helpless u fell like noone can help
for me praying has helped me alot coz nobody can understand wht ure going through better Jesus
be strong u're not alone

Wed, April 1, 2015 @ 12:01 PM

Fawn wrote:

I've been feeling pretty crappy for about 3 years now. Brain fog, dizzy, sweaty, weak, light headed. I feel like I am gonna pass out all the time to the point where I am scared of driving. Every dr. Told me I was fine, I went to 5 different ones. Until finally somone checked my Ferritin and I was a 2. I knew I was anemic after each of my babies because of my c sections. I am 32 and have a 5 and 3 year old. I never took iron like I was told to because it made me so sick, nauseas. Could I have been anemic this long because of not taking iron after my surgeries? I nursed both kids for a year so when my period did come back it's been heavy with huge clots. I am guessing that's why I am so low. I've been taking an iron pill with good the past 6 weeks, every day and I still feel horrible. How long does it take to feel better? I am so desperate to feel well again so O can be the bestom for my kids. I also workout 6 days a week and I can barely get through my workouts anymore it's so frustrating as I've been into fitness my whole life. Thanks

Fri, April 10, 2015 @ 9:52 PM

Hazel wrote:

@fawn you are almost describing me! Its been almost 2 yrs now, i still feel crap.lightheaded,brain fog, dizzy, name it.thats after a cs and open cholesystectomy last 2013. My cbc always comes out normal and each doctor i met would always recommend me to se a psychiatrist! Later i went to hematologist and asked her to chck my ferritin levels(yes! I was the one who suggested for her to check it) and results came, my ferritin level was at 6.5.iron deficient but not anemic.3 months after taking blackstrap molasses(unsulphured) levels went up to 14, still very far from the optimal level which is around 70! Hematologist said, she couldnt find any reason for me to still feel "low", lightheaded,fatigue and etc because cbc results are "fantastic".,,well im really "low" :-( anyone who is not anemic but with very low ferritin levels.,do you feel the same?

Thu, April 16, 2015 @ 11:03 AM

Jan wrote:

Glad I found this place but sorry anyone else has to feel as lousy as I do. My hemoglobin is not that low - 11 - but my ferritin is <1! I have been so tired and getting many more migraines than usual and very severe. I just kept doing what I had to do thinking it was something I was doing wrong. 

Dizziness lightheaded pressure in my head horrible fatigue weakness shakiness nausea. Finally went to doctor to get bloodwork still thinking migraine but wanted to 'rule out' anything else first. Well it turns out it is something else. I was feeling so bad I was waking up crying because I just didn't know how I was going to get through another day. 

Yet I have already had two doctors tell me being iron deficient anemic doesn't cause dizziness or headaches. Wth? My b12 is low too. My husband has really been picking up the slack, yet I think he still thinks I'm exaggerating. I'm not. I've missed so much work I don't if I will still have a job next week. 

I've been told to take 325 iron and getting b12 shots but that is it. Shouldn't I be doing something else? I'm too tired to figure it all out

Thu, April 30, 2015 @ 7:44 PM

Tanisha wrote:

Sorry for how you all feel but look up vitamin b12 it may help I feel just like you all I cry all day I have lil baby's so I keep going we all are going to be ok

Sun, May 3, 2015 @ 9:48 AM

Valerie wrote:

I have low B-12 and low ferritan. Heavy menses and two fibroids (uterine and para ovary). I have found a great deal of relief through unsulphured blackstrap molasses and a liquid B-12 supplement. The first month I took it my cycle went from 26 days with 6 days of heavy flow to a 35 day cycle with 4 days moderate flow - red and not the dark brown of fibroids. I have been on a 26/6 day cycle for over ten years. I have not had my next cycle yet so curious to see how it works out. I have absorbtion issues (low stomach acid) so I needed something that absorbed directly (the B-12 goes under my tongue). Not sure if the molasses will raise my ferritan - will see! I take one to two tablespoons of molasses a day. Hope this helps someone. I also gave up caffeine.

Mon, May 4, 2015 @ 3:48 PM

Carolyn wrote:

Im so tired of feeling sick.Was diagnosed with IDA in 9/2013 hemoglobin 5 and ferritin 2. Have had test after test-endoscopy, colonoscopy etc had bloodtransfusion in hospital when first diagnosed cant find any source of bleeding. After got out of the hospital was on ferrous sulphate worked for a little while but ferritin never got above 20 then started to drop again. Stared to experience severe panic attacks and racing heart-low and behold when I went in for blood test ferritin and hemoglobin started to drop again! Hematologist suggested iron infusion Had 2 iron infusions in December of 2014-they seemed to help for awhile but ive noted that when my ferritin starts to drop I start experiencing panic attacks-ive always been an anxious person but these panic attacks scare me to death. I feel like im going crazy!! I work myself into a frenzy when I have the blood test waiting for the results. I just feel so upset, anxious-why cant they figure out why I have this??? Recently my anxious, panicky feelings have started againso Im sure another iron infusion is in store but they cost a fortune I feel like I will be paying medical bills the rest of my life. I really need support as my family and friends really cant relate to what im going through. I want my life back :(

Mon, May 18, 2015 @ 6:21 AM

Carolyn wrote:

Just adding on to my last post-also went through a period where I had my heart checked by cardiologist referred back to gastroenterologist-took another endoscopy-no signs of bleeding but did find a moderate sized hiatal hernia...just one more thing for me to worry on Prilosec everyday or every other day for basically rest of my life....ive seen that these Prilosec type pills may prevent absorption of iron, will have to further discuss with my hematologist....just feeling so low and overwhelmed right now. My mom died from cancer when I was 12-I am now 46 with a 9 year old...I cant have my daughter experience the same thing I did -I have to be there for her!!!

Mon, May 18, 2015 @ 6:35 AM

Ya&#235;lle wrote:

Hi there!
I am very happy to see that I am not alone. I went through the same thing. Turns out I have multiple fibroids. My doctor told me that throughout is whole career, he rarely saw someone who had so many. I am getting surgery next week. I can't wait for my life to get back on track!

Mon, June 1, 2015 @ 12:22 PM

Pam wrote:

I started out 3 years ago with extreme tiredness and was told it was my bipolar meds causing the problem. I kept going for help and was finally diagnosed with low iron, hemoglobin, red blood cells and high white blood cells. I was put on iron and stayed on the iron (about 6 months ago) every other day. The tiredness has gotten sooo extreme since then(I took the iron everyday sometimes I was so tired) but the iron numbers have improved as well as the other results I am pretty sure. So tired I can barely function sometimes.... I went off the iron 3 days ago because I read it can cause more tiredness. I have a bit more energy but am still tired. My doctor says staying on the iron may have been causing some of the problem... I am having heart tests in the next few days to rule things out...Ever heard of any thing like this?????

Wed, June 3, 2015 @ 6:19 PM

Val wrote:

I've been feeling dizzy for a few months now and I finally made an appointment with my doctor and she tested me for a sorts of things including anemia but my levels were normal and my feritin was in the 80's... It's quite frightening to get dizzy to the point of almost passing out and not knowing what it is, the curious thing is that my coworker who is anemic, offered me an iron pill one day when my dizzy spells were really messing with me and within the hour, I was no longer dizzy... In fact I felt fine. So my question to everyone is can it be possible for me to be anemic even though my lab tests say I'm fine? My doctor suggested a possible dehydration but I've significantly upped my water intake and I still get dizzy spells that can last the entire day.

Thu, June 4, 2015 @ 2:04 AM

Carolyn wrote:

Val are you seeing a hematologist or regular family doctor? It has been my experience that I get dizzy when my levels are dropping. For example my ferritin right now is 22 and hemoglobin 12 and I haven't experemced much dizziness. You may want a second opinion. Good luck!

Fri, June 5, 2015 @ 6:25 AM

Est wrote:

Hi just by reading everyone's situations. It's somewhat the same. I've been on my period for almost 4 weeks straight now with heavy bleeding and huge blood clots constantly. I have to change every 5 minutes.I used about 4 bags of pads already and still going. I feel so weak n sleepy n cold. I can't get up to do anything for my kids cause I'm always tired. I go every begining of the month to my dr office to do a blood transfusion due to soo much blood loss from my period. so which that states I'm a anemic. The dr tried giving me iron pills,prenatal pills and nothing seems to hemoglobin is too low.I feel something is wrong because this is constantly. By the time I stop bleeding I'll start up like a week after...Now I'm noticing me feeling sleepy while driving too..which is not save at all. .what should I do? My dr really isn't any help.

Sat, June 6, 2015 @ 6:04 AM

Angel Cwright wrote:

So thankful I stumbled across this site. I have been IDA and B-12 anemic for almost 11 years now. (38) I have been having iron infusions and blood transfusions every three and six month in a cycle. I started having problems with my veins so they put in a mediport 5 years ago at the VA hospital. I constantly had the feeling of depression, anxiety and I just want to be normal. I moved 2 years ago, stopped treatment and was never told about flushing my mediport. I ended up clogging my subclavian vein causing aN aneurysm in my heart a year later. I had the mediport removed. Since then I have struggled getting a Dr to pull my iron levels, stating it was an unnecessary test. I have been a restaurant manager for 10 years and finally decided to get medical insurance through Darden, my employer. I had already been hospitalized for emergency blood transfusions twice in the past year with still no iron tests. I finally passed out at work yes, I struggled with all the other symptoms, but I ignored them as best I could and continued pushing myself saying I can do it I refuse to consider I felt sick or that I run on half the blood than a normal person does and I am capable of doing just as much as anyone else. Which lead me to passing out and being rushed to the ER where I was hospitalized 3 weeks ago in a civilian hospital my hemoglobin was a 4.6, my ferritin at 1 and my iron stores at 2 %. I started venofer twice a week and had my first treatment since the hospital this past Weds. I found out that I am still am a hard stick it took them six times so I will be holding treatment and getting a new mediport this Weds. My concern is that the venofer made me nauseous and dizzy and I had an extreme migraine for two days after I almost had to miss my daughter's graduation from high school the next evening because they wanted to admit me, which I respectfully declined since I have to battle this crap on a daily basis and push myself through a 12 hour day. Sorry not trying to rant or vent, but I have never felt this way with past iron treatments this is a new one and it does only take an hour vs. 6 hour treatments but am I going to feel this way after every treatment what happens when I go back to work I'm on a leave of absence right now?. My next concern is that my surgery is Wednesday, I don't know my surgeon and will have my consolt 2 hours prior to surgery, I have called the nurses and tried to speak with them about my blocked subclavian vein and they said I need to bring it up to my surgeon my point is I'm having surgery that day if it goes in my left side it could very well block my carotid artery which could then kill me having two major arteries clogged leading to my heart at least I think it could. Are my concerns legitimate or am I just paranoid because of how the VA system treated me? Why are they not putting a dye in me and tracing my blood flow, or will they do an ultrasound or just play it by ear when I'm under the knife? Any past experiences similar to mine or advice would be greatly appreciated. Thank you for reading a short summary of my experience.

Sat, June 6, 2015 @ 12:29 PM

Sonia Ferreira wrote:

Thank you for sharing your experience.
I am dealing with a similar condition for 10 years. My blood levels always were very low and now my hemoglobin stays on 8 and ferritine 3. I have been taking iron suplements, green juices and eat all possible food rich in iron. I ve been visiting doctors, homeopaths, chinese doctors, one knows where my low levels come from. I came across your article as I am always searching trying to find people with same isues. I ll start to take spirulina after reading some good reviews, spite the secondary effects. Hope my ferritine get highter this time.
If someone present same synthoms or know someone who does please share.
Thank you

Fri, June 12, 2015 @ 2:25 PM

Sonji Young wrote:

Thank you. Thank you. Thank you. As someone suffering from debilitating anemia, I've always felt like the information available was so impersonal and generic. Anemia seemed like a silent plague to which few research resources were devoted. It gives me hope to know that I'm not the only person going through this. 

Thanks for your willingness to start this site and initiative. Lord knows I need to get my iron up. Our bodies rely on red blood cells for basic function. I would love to get to a point where I'm not just functioning, but living energetically. 


Mon, June 15, 2015 @ 10:49 PM

Rachael wrote:

I was diagnosed about six weeks ago with iron deficiency anaemia after a visit to A&E with heart palpitations. I thought I was having a heart attack! Turns out I have been low in iron so long I thought that I was just overworked and unfit. My ferritin levels were undetectable and my symptoms have been horrendous. The dizziness, shortness of breath palpitations and just the sheer feeling of being "not right" has near taken all fun out of life. I am 43 and a school support worker for disabled children and I have been terrified of endangering my students and have taken huge amounts of time off work. I had one 1000mg iron infusion two weeks ago, but followed with an very heavy 8 day period where I lost so much blood I have just been back today for another 1000mg shot. One thing that may be of help is the discussion of menstrual blood loss! I was told if you have to change a pad/tampon any earlier than 3-4 hours you are bleeding too heavily, losing your iron. All my life I have changed hourly and thought it normal because this is something women don't talk about much. It's not normal to bleed that much! I was also a massive coffee drinker so have quit and changed to milo. Also avoid store bought iron supplements, they have so little iron you might as well be eating m&m's. Compared to the Ferro tabs from the chemist I am on now, that 5mg is nothing! I am really hoping after taking better supplements for a week now, and the extra infusion I will start to pick up over the next week or so. The doc is looking into implants to slow my bleeding down and other pills to slow bleeding in the interim, fingers crossed I can get back to normal quickly. I really miss normal! And my kids at work. Good luck to all, I hope some of this info helped.

Mon, June 22, 2015 @ 7:03 PM

Claire wrote:

Just read this page after discovering that I have iron deficiency anaemia and wanted to say thank you for the information provided. I have experienced EXACTLY the same symptoms and before my blood tests thought there was something seriously wrong with me, I cannot describe how extremely tired and awful I felt for so long thinking it was depression or something else. So thank you again for helping us and I kwill definitely be visiting the suggested site for more help.😀

Fri, June 26, 2015 @ 6:51 AM

Danny wrote:

I have had low ferritin for the last few months and on off last 2-3 years. It is always between 12-15, never more or less. This time its been 13, and i have low bp and dizzy spells along with my hemoglobin is 111, lower than average, hematocrit is just baseline low, mch is also baseline. I went to dr and she gave me heme iron. I dont know if this will, help, i have taken floradix and palafer in past without any improvement. I am constantly exhausted as if punched in the stomach. Heart is racing all the time, feel really dizzy. Always trying to catch my breath. I feel so helpless and depressed because i have no energy left for life. Dr doesnt do anything about it! I have seen two. I want iv iron because i have heard it works wonders, but my ferritin level isn't low enough yet i feel like i am walking (dragging) dead. Please help me! How long will the heme iron take to affect my body. I need my life back :(

Sat, June 27, 2015 @ 2:39 AM

Carolyn wrote:

Danny-have you seen a hematologist? Mine ordered an iron infusion when my ferritin dropped below 15-this last time I was at 11. Good luck.I can completely relate to your symptoms. I think too many times regular doctors see a borderline hemoglobin level and say you're fine many don't consider the ferritin-I can tell you from personal experience that when my ferritin drops below 50 I start to feel the fatigue this last time it was at 11. Just had my infusion last week waiting for it to kick in so I start to feel better and have more energy. I suffer from gastritis too which has been preventing the absorption of iron, so the infusions are the only thing that works for me. Unfortunately I have to have them every 6 months but ultimately its worth it. I wish luck! Hang in there.

Sat, June 27, 2015 @ 10:05 PM

tina wrote:

It's horrible having anaemia and leads to poor health affects such as
poor memory, fatigue, short attentions span, dizziness, feeling faint, exhausted easily and having a hard time waking up energetic, easily prone to depression and anxiety, fast heart rate, poor weight problems, always feeling cold, and other effects. 
I try to eat properly, eat at the right time, take the pills on a slightly empty stomach, exercise, reduce calcium products, and try to sleep at the right time.

Tue, June 30, 2015 @ 8:20 AM

Ann Hicks wrote:

Glad I happened upon your website. My husband has low RBC&low Ferritin (dropped from 37.8 to 8.7 in 3months). Diagnosed as anemic BUT due to Diabetes II. Goes next week for IV to try to raise ferritin (1st time for this.) He takes MANY Meds & insulin (has had part of colon removed few yrs. ago for pre-cancer & a polyp removed from colon&stomach recently. Also has stage 3 kidney failure, PAD,severe reflux (takes ACIPHEX?),and has heart disease (2 stints) & by-pass surgery 15yrs ago. The rapid ferritin drop is what has Dr. concerned & trying to get that up with IV. He's cut out caffeine, Been taking B-12 pills & Flintstones? with iron (per family Dr.) several years. Also, not long after he eats he has to go to the bathroom, so I'VE been wondering if it's a digestive problem. But Know Diabetes/kidney disease affects RBC & Ferritin. Any suggestions or experiences with this?

Sat, July 4, 2015 @ 9:13 AM

Jessica wrote:

I can't thank you enough for your story. I also am an avid ice chewer when my anemia is bad. It started out as a teenager (36 now). I would have random cycles and then some lasting months on end. I was diagnosed with PCOS and menorrhagia. Each time it got worse with the last cycle being almost 6 months long and each day I would have clots the size of fists passed. I stopped using tampons and pads as they were a waste of money for me and had to start using period cups. These cups are supposed to last up to 12 hours before being cleaned and reinserted, but sometimes I was lucky if I got an hour or two out of them. I am constantly tired, and out of breath. I didn't really think too much about being out of breath as I have bronchial asthma. It started getting worse over the last month with daily spasms under my rib cage which felt like Charley horses. So I finally kicked myself in the rear and went to the doctor and they ran my labs. Seeing all the red numbers on my lab really scared me. 
3.86 for red blood count, 8.4 for hemoglobin, 27.2 for hematocrit, 70.5 for MCV, 21.7 for MCH, 30.7 for MCHC, and 20.0 for RDW. reading what these numbers mean was scary and now I am scheduled for a full D&C with biopsy on the 31st and to have them insert an IUD that has the progesterone my body isn't producing. I don't think a Ferritin test has been run on me, but it might be in order after my procedure. I am taking daily iron supplements along with B12, but the cramps throughout my ribs, upper back, and neck continue. How long until anemia is considered "reversed", or is it ever reversed?

Fri, July 10, 2015 @ 12:46 PM

Jess N wrote:

Hey everyone I came here to see if anyone has been having the same symptoms as me okay it all started when one day I was sitting on the bed and my heart started racing I was shortness of breath then ever since that lately I've been really light headed , I get sharp pains in my head, I get chill, my arm and neck is sore, I still get heart scares as if my heart is going to stop sometimes it beats fast, I still have shortness of breath , if I stand up too long I feel faint, my body feel so weak I went to the doctor she just told me I am anemic but I think there is something else wrong can someone please help me I feel hopeless like I'm going to die

Sat, July 18, 2015 @ 4:45 AM

Maxi wrote:

I have been exhausted for since December when my Mom passed away, I thought it was just depression. With the encouragment of my husband, I went to see a provider who ran my blood work for fatigue. She wants me on Vit. D. since I live in the Pacific NW and work 12H Night shifts, I've been taking 5-hour energy to keep me alert enough to work, my iron levels were 12 and TSH 4.79. It has only been a week taking Vit D, Iron supplement and I continue to take a B12 (my labs proved I have room to take). I can sleep all day on my days off. I just want to know when I should start having more energy, I don't have 3-4 months, is there something else I can do in the meantime. This is so frustrating.

Sun, July 19, 2015 @ 7:13 AM

samantha wrote:

omg pica!!! I cant believe what i'm reading. 
since the birth of my baby 18months ago I have been crunching up to 10 ice lollies per day. People laugh at me and the guy at the store calls me 'lolly lady'.
today I was told I am anemic. And now while searching the web I find that my lolly crunching is actually a symptom. 

I originally went to doc with stomach pain and bloating etc. blood tests revealed anemia (severe).
now im v worried. My overactive mind has made a link between the anemia and stomach probs. Ive now convinced myself I have a horrible stomach disorder, cancer even which is causing a bleed. ugh thanks doctor google.
im 29 btw. Periods are heavy for 1st 2 days then level out. Also had a baby 18 mo ago.

Mon, July 20, 2015 @ 4:53 PM

Holly wrote:

I was told last week that my iron is low and am now waiting on a ferritin blood result. I'm absolutely exhausted, have left sided chest pain with constant palpitations and breathlessness, feel woozy and nauseaus and feel like crying all the time. Is this normal?!

Thu, July 23, 2015 @ 1:39 PM

Sherry wrote:

I had a CBC 4.2 and Iron Ferritin level of 2.8. I had a transfusion then I was tested and it was not enough so I had two Ferahim infusions and got so sick joints 42 blood clots in superficial veins fever two days after the second Iron. Now, I am getting the old iron infusion that takes like Two hours and I have had no reaction. My hair is falling out so bad, I am afraid I am gonna loose it all. I did not have hair loss before this. Any suggestions. I am at 12 CBC and they are keeping Iron up and now my hair is completely falling out. I just do not understand. Taking Biotin, prenatal vitamins, hair and nails vitamins and Bosely hair shampoo for 30 days and it just keeps falling out. Today she took Thyroid tests and hormone tests.

Fri, July 31, 2015 @ 4:12 PM

Melinda Jennings wrote:

After several trips to my medical doctor, it was determined my ferritin level was a 2.5. Several times in my last class for the day, the students would say Ms. Jennings you are as white as a ghost. I knew something was wrong because I would lose my sight for seconds. Instead of walking around the class, I would roll in a chair on wheels. As soon as school was over I would drive home and take a 1.5 to 2 hr nap. I was exhausted. That summer was spent sleeping!( literally) Vitron C was prescribed but really upsets my stach. Ferritin stays up as long as I take the meds. In the mean time the cardiologist has determined that my heart rate and blood pressure drop tremendously after standing. In 2012 I was placed in the hospital for stroke symptoms, I believe my ferritin was rock bottom then. To my knowledge it was not checked then. Later a NP discovered my panic low ferritin. Can anyone tell me if the stroke and heart symptoms could also be due to low ferritin.

Fri, August 7, 2015 @ 9:28 PM

Naomi wrote:

Hey, don't know if anyone can help? I have been thru 2 blood transfusions (both of which failed to even relatively boost my levels) I am 19 and my current haemoglobin level is 5.5! I have been in for countless tests, procedures even been tested for different stuff that contributes to anemia and still 2 years later found nothing. I find it seriously sucks the life out of me and affects my work. I have been unable to do any of the fitness that I use to I can even run for 3 minutes without having crazy heart pains and unable to breathe. Does anyone know a way of helping with the exercise side of things as I don't want to get out of shape?? And I find that once I'm able to finish a workout my energy levels are kind of normal for a change :/

Mon, August 10, 2015 @ 5:00 PM

Karynne wrote:

I had gastric sleeve surgery and no longer absorb iron through the gut. My iron dropped to 2 after months of menstrual bleeding. My blood level was 80. I've been to a hematologist and had 15 injections and 2 IVs but my iron is still only 5. My bleeding is under control and my blood has increased to 118 but the iron is still a mystery. I'm exhausted and have run out of sick days! All the same symptoms of others! I just wish someone could explain where the iron is going!! I'm considering getting the doctors to look at my kidneys...I'm desperate, at 44 and being a teacher, in can't continue with no energy. Hematologist appointment is in 2 weeks...

Tue, August 11, 2015 @ 7:38 AM

kash wrote:

hi I just fell upon this site , I was looking for some conclusion to the way I way I was feeling shortness of breath tiredness weak no energy and swelling in my body didn't know my iron was causing this I thank u

Sat, August 15, 2015 @ 12:12 AM

Julie wrote:

Is it common to feel fuzzy headed and unwell starting iron supplementation? My husband and I both began a course of natural high absorption Iron with Vit. C added and we had circles under our eyes and both felt kind of fuzzy headed, like our head was congested. When we stopped, it went away. Any ideas?

Sun, August 16, 2015 @ 11:29 AM

Anne wrote:

I had a blood test about 6 months ago and it showed that I had a ferritin level of 5. At that time it was the end of the nordic ski season and I had been feeling horrible and not racing well. I was also experiencing headaches, fuzziness, and trouble concentrating at school. At that point I hadn't had my period for 6 months (and still haven't had it despite my ferrarin rising to 28). 
I feel SOOO much better now after ~6 months on oral iron supplements but I am worried that my iron levels are going to drop again during this next school year and ski season. I was reading through the rest of the comments but didn't notice anyone else with a similar story. My main question is is it possible for iron levels to become depleted only because of hard training? Or could there be some other underlying cause?

Mon, August 17, 2015 @ 10:20 AM

Louise wrote:

Hi, I live in the UK and have been diagnosed with IDA and Vitamin D deficiency but the doctors cannot find a reason for this and have told me that some people just stop absorbing iron for no reason. Is this correct? I do not have periods as I am on the depot injection so not due to blood loss, they have tested my thyroid and para-thyroid and these were fine and also tested for ceoliac and chrohns but these were negative. I am on tablets and have been taking these for 3 weeks now but I feel no better, so tired, headaches, dizzy and feel sick all the time. I'm trying to carry on working but I feel so ill it's really hard to keep going. Does anyone know why I've become IDA with no apparent reason?

Sun, August 23, 2015 @ 6:30 AM

Lorrie wrote:

Hi I was diagnosed with anaemia in March 2015. Since taking iron tablets my periods have gone haywire. I have periods every two months. Is this down to the iron or coincidental to my age I am 47

Mon, August 24, 2015 @ 1:55 PM

Patricia Rodriguez wrote:

Oh my, am I happy I found this site. For the last 12 years I have been severely anemic. Having had a blood transfusion about 8 years because of the secret of it and having infusions up until about 7 years ago. I had a gastric bypass 13 years ago and therefore my body does not unfortunately absorb the pills. I would have to do infusion treatments every so often and I believe that's the reason for my irresponsibility on my behalf for the last 7 years, well let me recommend all the women out there in advance NOT to ever do that because it has come with a pretty price if I may call it that! All jokes aside, see for the last 15 days I have been extremely sick with migraines. I have made 2 rings to the ER 1 to it urgent care 2 chiropractor visits and finally 1 to my Pcp. I have had 1ct scan, 1 spinal tap spinal, 3 sets of blood work of which I never got the results back from the ER and they never realized I guess how low my iron was even though I told them good knows how many times! Finally last Friday my Pcp sent for a final set of blood work of which she got results today and ding ding ding, the verdict was in and my results show my hemoglobins are at 8.8 red blood cell count are3.81 m/ul And my iron is 8.9. I am having problems with my head, eye sight, a span feeling on shoulder, knees hand and fingers and throughout my body, my back pain from a car accident that I had 4 years ago is coming back, I am running fevers and now when I am trying to sleep I can't because I get this feeling of sensation that my heart is stopping and u don't know if that has something to do with me being short of breath and being weak or if it has to do with me being on muscle relaxers for my migraines and topomax which I am learning is a following medication fit muscle relaxers. I am getting lethargic and weak and my "emergency" infusion is on Thursday, 2 days from today. 2 more nights without sleep. I hope my first treatment will be able to help me with spasms and my sleep. Whatever it may be ladies please know that I am so grateful that I have found you guys and will continue to follow you from here until the rest of my life just like my treatment. Like I have told my family and I don't know if you guys are believers but I said to them, this is the way fit Good to pull me back to Him because I was once a servant and I shided away. I thank him for having me up at 1 am and researching anemia so I could come to your site, thank you all fit putting it together and I just wish I could have researched before I let it get this bad.

Wed, August 26, 2015 @ 4:06 AM

Carmen Wilson-Sailer wrote:

Can someone from this site please contact me I need help and feel like it is not getting resolved thru my doctors office correctly and am wits end. Please I am so tired and feel awful all the time. I don't know what to do or who to trust if they know what they are doing is right for me.. please....

Wed, August 26, 2015 @ 10:24 AM

Veda wrote:


Thanks for starting this site. When I read your story, it was like i was ready my story. I've been anemic all my life and never paid any attention to it. I took the occasional iron supplement, but it never seemed to work, so I never kept up with it. My grandmother died a certain type of anemia (died after a blood transfusion) and I just always knew that I had something similar. Anyway. I went to many doctors and they could never tell me definitely what was wrong wiht my blood, and they insisted that I didn't have the same type of anemia that my grandmother had. 

Recently my blood dropped to 7 and my hematologist suggested that I go to the ER to get a transfusion. Well the ER kept me over night because my blood dropped to 6.8 and they wanted to observe me when I received the blood. They did multiple test and found out that I'm not the typical IRON deficient anemia person, I'm deficient in B-12 and that's what is causing my anemia (who knew). Now I'm popping B-12s everyday and I get the occasional B-12 shot.

I'm in the process of discussing the possibility of me getting a hysterectomy. I've been told that will help with my anemia.

Sat, August 29, 2015 @ 4:57 AM

J wrote:

Seems as i read through these stories that some of us may have a parasite issue. Parasites feed off of heavy metals and can cause iron deficiency. b12 has been more then necesary for me and it wasn't till i found out about the 23andme test where they check your DNA through saliva . For me , my methionine is not converting into SAMe which detoxes the body . When i do an infrared sauna i feel much better yet sometimes i need to up my iron intake. Thank you for this article . I have learned why i feel my heart race at times and feel over heated all the time . Thank God for nutrionists and naturopaths ! Doctors seem to tell me I'm fine and want to give meds fog depresion. I prefer to Address the cause rather then treat a symptom.

Fri, September 4, 2015 @ 4:40 AM

Lori wrote:

Diagnosed as anemic a few months ago after being exhausted for over a year. Put on prescription iron twice a day and got my life back. 
Breathing issues and heart pains gone!
But I missed my pills for 3 days and today I feel like my head is going to explode. 
Is this iron withdrawal? I just remembered and took my pills but curious if anyone else experienced this.

Sat, September 5, 2015 @ 7:05 PM

Brian Hudson wrote:

My wife has had 2 rounds of iron infusions, after completion of the first treatment she past out and her ankles hurt to the point she could not walk. We just finished the second round and the nausea and joint pains are worse. Should she stop receiving this treatment or is this a typical side affect? She literally does not want to get out of bed.. Please if there is anything or anyone that might shed some light on this terrible disorder, we are desperate!!!!!!!!!!!!!

Mon, September 7, 2015 @ 11:33 AM

Nic wrote:

Brian, I had reactions similar to your wife's. They should be giving her Benadryl IV and the steroid solu medrol prior to starting the infusion. That all but eliminates any discomfort. Report all reactions to your doctor. They can help!!!

Wed, September 9, 2015 @ 10:45 AM

Danielle wrote:

Hi i have had energy issues my whole life brain fog started when i was about 15 and being cold and craving ice has been around as long as i can remember. Im 30 at 23 i had twins and the brain fog vot way worse along with my energy levels but the first year after my pregnancy it got slightly better then as 27 i hadn't second pregnancy and things took a turn for the worse my already severe periods became completely unbearable my energy levels became so bad i couldn't even push through it anymore and being algae for more than 3 hours at a time left me ready for a nap. About four months ago i started getting what i thought was a charlie horse in my neck that was not going away i couldnt turn my head to the left very far i had previously already experienced pins and needles in my limbs almost constantly and about the time my neck pain started i noticed i could never get warm and my hands would be ice cold to the point of going numb when other people were sweating as things progressed the charlie horse sensation started crawling down the left side of my back and being awake for 30 minutes was a struggle i also started having a pinched nerve sensation on my periods in my left hip causing walking to become very painful. During that 4th months' period the neck and back pain became so bad it felt like my body was trying to lock up completely. I had started shaking uncontrollably become constantly sick to my stomach and the menstrual pain was so bad i was vomiting and struggling to breath. The last day the shakes got particularly bad and the severe dizziness kicked in. I didnt know whT was wrong with me and i was terrified. I dont have insurance but i was so scared i thought i was going to have to be hospitalized. Then my husband after listening to me almost in tears about everything i was experiencing recognized my symptoms from a jury duty case he was on about a woman who was anemic that died. So i went and bought a multivitamin with iron and took 2 went to bed and took 2 mord the next morning. Halfway through the day i was feeling better. After 3 days the fog was starti g to lift i felt more awake and the pain in my neck started to go away and i just kept getting better. Its been about 1 1/2months i switched from the multi vitamin, out of concern of O.D.- ing on the other vitamins, to a vitamin C iron complex vitamin and im noticing a decrease in the irons effectiveness, i have to take iron about every 6 hours or i notice the neck pain starting to creep in. I need to see a doctor but am trying to make due with self medicating and just pray i dont accidently O.D. on iron in the process but i feel like the life is draining out of me even after only half a day. Things are definately better than before but im very worried about what all is going on in my body. :(

Fri, September 11, 2015 @ 2:28 AM

Roxanne Davis wrote:

I've always been anemic since I was a teen and now i'm 38. I've had to undergo one blood transfusion and I take iron pills every so often but not as much as I should. I'm addicted to eating argo laundry starch and i've been eating it for the past 20yrs. non stop, in which nobody knows. I've been dignosed as having fibroids as well. I'm so tired of never having any energy to anything, i'm irritable everyday, its effecting my eye sight and memory, plus I sweat at night as if I just got out of a pool. I'm at my wits end and I need help. The more I want to stop eating the argo laundry starch, the more I find myself indulging in it. Please help me

Fri, September 11, 2015 @ 3:05 AM




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Wed, September 23, 2015 @ 7:30 PM

Tucan wrote:

I'm so glad I found this site. Several months ago I started noticing pain in my knee. I'm 43 very active and as I was going on a run and noticed pain but blew it off. Within a week I started noticing other things like muscle pain in my thigh and muscle spasms in my calf. A week later came the tingling and pins and needles in my extremities to the point where I could no longer run or lift weights. I was very weak and it was painful to even walk to exercise. I had recently had my ferritin checked and it came back at 17. I called the oncologist and was told this was very low and suggested iron IV. I had my first IV (4 hours long) two weeks ago and my second today. I was told it would take about 5 days to notice any difference. I did notice at day 6 that the itchy pins and needles went away and the muscle spasms became much less. However, still have minor muscle and joint pain daily. The muscle and joint pain has become much less but is still not gone. My shoulder and neck pain has decreased significantly too. I also noticed my hair was starting to fall out. All of my other labs came back normal except my ferritin. I have always been an extreme athlete so the past few months have been horrible for me. I am hoping that as my ferritin increases these symptoms will subside. Has anyone else had these symptoms and IV iron and if so how long before the symptoms subsided. Thank you

Fri, September 25, 2015 @ 11:51 AM

Liz wrote:

Have had iron-deficient anemia off and on for years. It improved when I stopped eating wheat. Gluten is a sticky protein which blocks the body's absorption of minerals, including iron.
I eat chicken liver in addition to taking Duofer/Bifera and eating some red meat.
There is a link between thyroid issues and IDA. After being diagnosed and treated for hypothyroid, my anemia has improved.
Extreme athletics can lead to anemia. Look up runner Alberto Salazar to find out more about that.

Sat, September 26, 2015 @ 11:20 PM

hannah wrote:

I have symptoms very similar to everyone else. Took around 4 months for Dr. To diagnose as I am iron deficient without it showing an effect on my FBC. I had unbearable palpitations/irregular heartbeat, freezing cold feet and legs, pains in my legs, often would wake up with numbness in arms/ legs/ hand etc. twitches, chest pressure and pain (like someone sitting on my chest or pressure under my ribs), struggling for breath especially uphill, feeling like I couldn't get a deep enough breath, no motivation, fatigue, constant worrying, foggy head, worsening eyesight, feeling down, hair falling out, brittle nails (slightly spoon shaped), feeling faint esp around my period and balance and coordination issurs. I have listed as much as possible because my Dr's told me it couldn't be iron because my FBC was OK and it wouldn't cause my symptoms even after ensuring they knew I was a strict vegetarian. After lots of blood tests, heart monitor etc. I requested they test my ferritin - they were a bit reluctant as it wouldn't be causing my symptoms. But bingo My level was 13 (not as low as some here but obviously low for me as I was feeling terrible). I've now stopped being vegetarian and am taking ferrous fumarate twice a day and in one month my level has gone up to 36. I feel a lot better and many of my symptoms have subsided or lessened and I managed my first proper exercise for months this week as I actually have energy and dont feel like I am about to have a heart attack. Dr says he wants to see it at 50 (from what I have read that still seems too low for fertility and hair growth) so I will push to have them for longer until I am at an optimum level. I hope this helps someone struggling, it is a truly awful feeling and I hope anyone suffering feels better soon.


Thu, October 1, 2015 @ 5:04 AM

LaNelle R. Riddle wrote:

My Mother started with iron based anemia for 5 years and the doctors didn't think much of it. After 5 years she began iron infusions then blood transfusions until she bled to death at age 66. I am her daughter and have had anemia off and on through my life. The last 3 years I have had iron based anemia. Then my levels got down to 7.5 and I received two iron infusions and B-12 shots. It brought my blood level to 12. I felt on top of the world. My Gastroentologist said that I had 4 small erosions in my stomach and a hidal hernia 5x's to large. Out of two upper and lower G.I'd, two slow bleeds was all they found. 4 months later my oncologist said all my levels were considerably lower than my last time and said this was not a slow bleed. It was a fast bleed. I had double doses of iron infusions and B-12 injections and have grown weaker by the day. I think that I am doing the same as my Mother only younger. The doctors won't even consider it as a possibility.

Sat, October 3, 2015 @ 5:21 AM

LaNelle R. Riddle wrote:

My Mother started with iron based anemia for 5 years and the doctors didn't think much of it. After 5 years she began iron infusions then blood transfusions until she bled to death at age 66. I am her daughter and have had anemia off and on through my life. The last 3 years I have had iron based anemia. Then my levels got down to 7.5 and I received two iron infusions and B-12 shots. It brought my blood level to 12. I felt on top of the world. My Gastroentologist said that I had 4 small erosions in my stomach and a hidal hernia 5x's to large. Out of two upper and lower G.I'd, two slow bleeds was all they found. 4 months later my oncologist said all my levels were considerably lower than my last time and said this was not a slow bleed. It was a fast bleed. I had double doses of iron infusions and B-12 injections and have grown weaker by the day. I think that I am doing the same as my Mother only younger. The doctors won't even consider it as a possibility.


Wed, October 7, 2015 @ 1:20 AM

Tia Hauser wrote:

I'm 13 and I'm taking an iron medicine that's liquid and it looks like yellow pee and it tastes like dog like wet dog. And I the symptoms are keep getting worse overtime and my parents are putting an end to this. I keep getting insomnia, headaches, migranes, blurred vision, dizziness, and stomach aches that are severely painful. Can you please help me?


Thu, October 8, 2015 @ 7:31 PM

Vanessa Ofori wrote:

Hi I'm 23 years oldI have had low iron, b12 and vitamin d3 for 1 year now but i only found out 6 months ago. I'm always tired and my brain fog is very bad its scary. i lost my previous job over it.


Tue, October 13, 2015 @ 4:25 AM

nanny wrote:

So I had severe anemia two years ago. 
After months of taking 35mg elemental iron three times a day I slowly started feeling better. 
Past month I have been feeling more tired but with balancing work and having two small kids I don't have time to stop..this weekend I almost passed out during a hike.
I have been having almost daily headache, neck pain,my feet and fingers are constantly freezing cold and I get winded easily. 
It still took me all the way to this weekend and in the middle of climbing a hill to realize my heart is pounding and I started feeling dizzy and to put two and two together. I started iron supplement three times a day and made appointment to see my doctor so he can do blood test but all he said is if the symptoms are same like two years ago to start taking iron ASAP for at least six month. Hopefully I will start feeling better soon.

Tue, October 13, 2015 @ 8:47 AM

Tucan wrote:

Update: after two four hour iron IV infusions last month I am happy to say I finally feel like myself again. It's been 5 weeks since my first IV. I am virtually pain free now. I can't believe my low ferritin could cause so much pain. I went from being an intense athlete to barely being able to walk with out major pain. If you read my last post and have been experiencing the same I would urge you to do the IV infusion immediately.

Tue, October 13, 2015 @ 12:21 PM

Tucan wrote:

Update: after two four hour iron IV infusions last month I am happy to say I finally feel like myself again. It's been 5 weeks since my first IV. I am virtually pain free now. I can't believe my low ferritin could cause so much pain. I went from being an intense athlete to barely being able to walk with out major pain. If you read my last post and have been experiencing the same I would urge you to do the IV infusion immediately.

Wed, October 14, 2015 @ 7:44 PM


I have the same symptoms as you had...let me ask..if are you ladies look very pale ..because I have a very pale lips,skin,and eyelids for too long..and now I had the symptoms. the doctor said I havea normal hemoglobin..but he never test the iron in my blood including the ferratin much does it cost for the said test and what doctor can give treat us...

Thu, October 15, 2015 @ 5:51 AM

charlyn wrote:

I have the same symptoms as you had...let me ask..if are you ladies look very pale ..because I have a very pale lips,skin,and eyelids for too long..and now I had the symptoms. the doctor said I havea normal hemoglobin..but he never test the iron in my blood including the ferratin much does it cost for the said test and what doctor can give treat us...

Thu, October 15, 2015 @ 5:52 AM

ivana wrote:

I look very pale since I was a kid,pale lips,eyelids,pale yellow skin,palm and nails.the past month I experienced severe fatigue,insomia,backpain,pain in my lower right abdomen,dizziness,pain in my arms,knee and tingling pain in my feet,shortness of breathing,I cannot withstand cold temperature,heavy head and double vision,I had a cbc last two weeks the cbc is normal.. I never tried ferratin and iron level in my blood how much it cost and what type of doctor can help us...anemia runs in the family,,

Thu, October 15, 2015 @ 8:11 AM

Denna wrote:

I too am thankful for this site. 5 weeks ago, I was taken to the emergency room due to dizziness, that make by blood pressure and heart rate spike up. The ER Dr put me on blood pressure meds and sent me on my way. I was determined that something was wrong with my heart, so I went see a cardiologist. He ordered multiple tests ,including labs. I was cleared of cardiac issues. My iron was low so he suggested I see a hematologist. He checked my blood and ordered a ferritin test as well. All blood was fine, except ferritin was 4.6! Iron was 22 and blood count 12. I am always fatigue, lightheaded, fuzzy-headed, and nauseated. On 90mg elemental iron daily. I try to eat a n iron rich diet every day. I go back in 6 weeks to have more blood drawn to check my levels. Praying it will be much higher. Daughter getting married in June and want to feel good by then. This is affecting my work performance as well.will update levels mid November.

Fri, October 16, 2015 @ 12:46 AM

Mary Owens wrote:

I can't imagine that the doctors gave me 30 blood transfusions and do nothing else to help me with this problem. I hurt all over my body. I'm so broke paying hospital, doctors and ambulances. Now I haven't the finances I had before they won't take smaller payments from me and send collectors wanting payment in full. My insurance pay contain things and death is knocking at my door. I'm so grateful I found your site I'm happy that someone cares to tell me what to do.

Fri, October 16, 2015 @ 11:25 AM

Bana wrote:

I've went to 6 different doctors over a period of 3 weeks trying to work out what was wrong with me. My symptoms were: 
-fast heart beat
-racing heartbeat after small amount of exercise
-tired legs from walking up steps
-hair falling out
-yellowish skin
-pain in my left armpit
-tired arms
-neck pain
-upper back pain
-exhaustion -desperately needing 1 to 2 naps per day
-brain fog
-couldn't focus on work
-sick and sniffy all the time
-went to ER because of racing heart and sore left armpit
I had one horrible doctor angrily telling me there was nothing wrong with me and it was just anxiety. Finally a doc told me that I look pale and should take some iron tablets. I immediately felt clear headed and have been gradually gaining energy. All my iron levels were within acceptable ranges but towards the low end. I am taking liquid iron as well as FeFol, Vit C and Chinese herbs. Starting to feel gradually better but it definitely takes a while. After having read this, I will give up tea as well, although Rooibos tea has iron in it and no caffeine apparently. 
This website has been so good to come across because the symptoms can be very scary and you start to wonder when they'll ever stop. Good luck everyone. Take care

Sat, October 17, 2015 @ 6:47 AM

Bana wrote:

Oh, also I felt dizzy and had a pounding heart but as soon as I took my first iron tablet I felt very calm.

Sat, October 17, 2015 @ 6:50 AM

Samantha wrote:

Anemic since I started my period. No one ever explained iron or anemia to me. So I didn't realize how important it is. So I lived life tired, then one day I couldn't catch my breathe and dizzy. Rushed to the ER I was given two pints of blood and iron. Left feeling better. 4 months later dizzy anxiety vision blurred leg pains very week. My hemoglobin wasn't low enough to get blood. So the ER sent me home. Saw a hematologist and my ferritin was low. First Iv iron took away the dizziness and anxiety. I was able to get out of bed after spending two weeks in it. Everyday got better. Still experience the leg pain and weakness. I'm not 100% yet but everyday is better. Will get iv bag number two in a few days. Then I have to make sure to my iron every day three times aday

Sat, October 17, 2015 @ 10:37 PM

Kim wrote:

Going through the same as many of you. I've been having heavy periods for the last ten years with extremely heavy flooding periods for the last two. I've been told for years that I was anemic and should be taking iron but I had no idea that IDA could lead to serious health issues. Two months ago my hemoglobin was 74 and iron was <5. I realized this was bad, but when I went to my pain specialist for my back treatment she was shocked when I told her about the periods and the anemia. She said that with hemoglobin that low, if I were to have any kind of bleeding I could end up in a serious medical crisis. She even said that I could die,and that people don't realize that anemia that severe can be life threatening in combination with more bleeding, whether from periods or emergency surgery. I also would not be accepted for the back surgery that I'm on a waiting list for unless my levels were better. Add to that all the fatigue, hair loss and all that other stuff. Needless to say, I am taking my supplements...I take Triferexx 150 twice a day and have got the hemoglobin up to 89. The iron us still at <5, but I guess that's because I am using all that I get right now to raise the hemoglobin to more normal levels. I thought it would work faster but my doctor says not to expect to be at normal levels for five or six months. Fingers crossed that I don't bleed...I'm told that I am to go straight to the doctor or emergency if the flooding starts again before I see the gyno next month. Possibly with a progesterone only IUD I will get the heavy periods under control so that I can beat this. I just want to make sure everyone out there realizes that IDA can lead to life threatening situations. As if this chronic nightmare isn't bad enough!

Wed, October 28, 2015 @ 2:52 AM

Sherry Goodwin wrote:

I can't honestly say that I am glad I'm not in this boat alone. I wouldn't want anyone to go through what I have experienced. I have been treated by a G.I. doctor for almost 4 years now for Ulcerative Colitis. Almost a year ago, I had a routine appointment and both my doctor and I thought my condition had improved tremendously as I had been in remission for over a year. Just as a precaution, I asked him to check my vitamin/mineral levels. I have had vitamin B1 and B12 deficiencies in the past and try to keep a watch on them. 2 days later, his nurse called and told me everything was normal except my iron which was low and that I needed to take a supplement. Shortly after that, I went to see my Primary Care Doctor with my lab results. Both my iron AND ferritin levels were low. This doctor basically blew it off & told me yes, it is a little, it's really no big deal. This was only reinforced when a local pharmacist told me that if I am anemic, my iron levels will NEVER be normal again. So, it was my understanding, based on what they both told me that taking an iron supplement was both pointless and unnecessary and did not take them. I DID come to regret that. Almost 6 weeks ago, I knew something was terribly wrong with me but couldn' explain it other than to say that I was exhausted all the time and wanted to do NOTHING except sleep (which was very strange to me especially since I have suffered with chronic insomnia for 14 years). I just tried to make up for the exhaustion by increasing my caffeine intake. It seemed to help for a while. But,while driving to my first day of my internship ( I had just earned my Doctorate in Naturopathic Medicine.... And, NO... I am not a Naturopath who is against medical doctors or modern medicine. I believe they are both critical for a healthy lifestyle. I believe there needs to be a healthy balance between both and my goal is to work with patients in mild to moderate health to help them to improve their health. Those who range from moderate to severe need to be treated by a MEDICAL doctor). Anyhow, on the way to my first day of my internship... had just dropped my 11 year old son off at my mom's house and about 30 minutes later, I blacked out behind the wheel. This resulted in a head-on collision with a large pickup truck (I was driving a retired police Crown Victoria). I am SO thankful that the other driver was not injured at all and my injuries were minor (I had a sprained ankle and fractured the end of one finger). Under the circumstances, I was not cited ,(in fact, as of today, almost 6 weeks later, I STILL have not spoken to a police officer about the incident and the officer who worked the scene won't return our calls). Fortunately, we were able to locate the other driver to give him our insurance information and our insurance company has been great in dealing with the other driver's claim and we haven't had any difficulty. The Trauma unit, of course, ran many tests....toxicology, blood count & other labs, CT Scan (including a brain CT), x-rays, and a tetanus shot. The only thing that wasn't normal was my iron level, which was low. They referred me to a Neurologist to rule out any kind of brain condition like seizures. The Neurologist ordered an Eeg, which was normal. Now, I have to go to Cardiology to rule out any heart problems or damage. This whole thing has been a nightmare. I've been informed that had I been driving a different car, I most likely would not have survived the impact. And to think if it had happened literally minutes earlier, my son could have been seriously injured or well as the other driver. I live in Georgia. The LAW in GA states that any time s driver loses consciousness or falls asleep behind the wheel, they are not permitted to drive for 6 months unless the cause can be absolutely determined. Even though every single test was normal except for the Anemia, they are saying that I fell asleep behind the wheel. I know that isn't true because only seconds before the collision, I was wide awake and now, I have absolutely No memory of the accident until the final impact. I have done some research about anemia and do have many of the symptoms. And, having 5 sons ranging in age from 20 to 11, I always keep popsicles in the freezer. Up until now, I only had one occasionally. For the past 2 or 3 weeks, I have been CRAVING them...even the flavors I don't like. I will eat at least 7 or 8 in a single day. I saw my Neurologist today and despite the symptoms and lack of any other medical explanation, I cannot get them to check my iron level. I have begged the Neurologist AND my Primary Care Doctor and neither will order a simple blood test to check my iron level. They both insist I fell asleep. I'm frankly very scared at this point, not to mention traumatized. I don' know what to do now that I have reached the end of the line of tests. What can I do now? Do I have to wait until I die for someone to listen to me? I'm sorry this has been so lengthy. Thank you for going to the trouble of reading it.


Sat, October 31, 2015 @ 12:33 AM

christine wrote:

OMG ICE im addicted to ice too ! and my levels are 7


Sat, October 31, 2015 @ 7:33 PM


Thanks for sharing your story.

Sun, November 1, 2015 @ 10:34 AM

Rachael wrote:

I am so thankful I found this site. The author's story is nearly identical to mine, except I have two girls! I went for my first appointment with the hematologist today and spent the entire time thanking God I was only there for anemia. The other women, all in various stages of chemo, were so brave and kind, I felt like an imposter sitting with them.
I go for my first transfusion next week, and will have at least one more after that. My hematocrit is down to 4, and just bringing groceries in the house gets me winded, and if I don't sit down for a minute or two I get dizzy and nearly faint. The Dr mentioned minor side effects, not feeling well, fatigue, etc. I was wondering if anyone had some insight on this? Should I take the next day off?

Mon, November 2, 2015 @ 11:47 PM

Brianna wrote:

I'm a teenage girl (14) who's been feeling this way for the past 2 months or so! It also happened to me about 2 years ago, and I didn't know what it was. I'm sooo scared. I thought I was dying! Like today n school, my heart started to beat really fast and hard and my chest felt tight and I thought I was dying, no lie! My mother is a nurse, and she said that maybe my iron was low, but we really didn't know. I really want to go to the doctor....

Thu, November 5, 2015 @ 1:47 PM

Kimberly Long wrote:

I'm glad I got to read your story.... I think it's time for me to go see a doctor about possible anemia... I don't have time to eat usually in the day, I'm addicted to caffeine quite frankly I don't think I can do anything with out it. I'm very tired, foggy sometimes, I bruise easily, I have shallow breathing, headache, cold sweats on the daily... I'm only 30 mother of two young boys... I have to get better for them...

Fri, November 6, 2015 @ 3:21 PM

Patricia A Seibel wrote:

I just kept feeling worse day after day, telling my Dr. 3 times in a mo.i had bad runs as well,he did nothing, he said, you know when we reach our 60's we are going to feel tired,etc. I told him never to talk like that to me again. he got a PA and I saw her, telling the same thing, so many stool tests, and a lot of blood, I told her I needed to keep my blood.
The next day I was called and to go into ,,,, hospital asap. I was told I was down to 5, and its very bad. I was given 3 bags of blood and sent home. I go in every mo.and still bad, but reading your letter on here has given me hope, so I had just started drinking a lot of tea, so thank you again for your time, and caring enough to help other people as well.
Patricia Seibel

Mon, November 9, 2015 @ 10:29 PM

vanessa wrote:

Hi everyone. Im feeling very weak dizzy not hungry at all have been having constant headaches im always cold now more then usual and im loosing weight with out doing anything ive already lost 70lb in the last 8 months or so i feel terrible right now and am contemplating whether to go to the hospital or just let it pass. Im anemic for the past two years but have never felt this bad. Any advise?

Mon, November 9, 2015 @ 10:51 PM

Cassie wrote:

Hello thank you for your letter. This site is wonderful. I don't drink sodas. Only water, lemonade, or tea. I guess I will knock tea out of my game. In April 2013 I had a miscarriage and didn't realize it. I was 39 and a mother of two boys. I started to get weaker and weaker. I felt like I couldn't get air. I felt like I was dying. 

The doctor found I had anemia I had an 8.5 and was real close to needing an infusion. I stayed at this level over a month. I was lucky to make it to 9 for another month. Once I got to 10, which took 3 months I was better. 

Here I am now back at square one. Back at an 8.5 and it crept up on me. My Dad died two weeks ago so I assumed I was depressed. It wasn't until I couldn't breath, had mild chest pain, and every bone and muscle ached; that I realized. Oh yes, I had a heavy period I think I am anemic. I am. I feel super sick but not as bad as last time. 

Working on a green leafy iron rich diet. I am going to take my iron with a little OJ because it helps you absorb your iron. 
I am wondering if I have PICA. I had a baby 14 months ago and I have been addicted to ice cold crunchy cucumber chunks ever since. I eat about 3 a day. Could this also be a sign of PICA?

Thanks for your site. It's very informative!! 

Tue, November 10, 2015 @ 5:41 PM

Julie Bradshaw wrote:

I have been to hell and back..I had no idea what was wrong with me in the summer of 2015...I just started to feel weaker and weaker..I am 50 years old and thought I had the flu..I really had no idea what was wrong with me except that I could only walk 10 feet without stopping to rest..When I finally went to the ER..they told me I had a hemoglobin count of 4! No one could believe when I walked into the ER versus being carried on a gurney..I had 5 blood transfusions that brought by count up to 9.2..but my iron levels are still at 22 and I am now experiencing 2 months later..horrible heart palpitations and nausea..I go for iron transfusions once a week and they really have not made me feel any better yet..good luck to everyone..


Thu, November 12, 2015 @ 9:54 AM

Fikile wrote:

being sic k and not know it. scary. I've practically suffered all of the above and had an explanation for all of it except realizing that I need to regain control of my life and fight back before its too late. thanks for sharing and all of the best as we claw back on our lives. thank God for you all.

Mon, November 16, 2015 @ 4:14 PM

Leeann Del rio wrote:

I am 38 years old. I have suffered from Anemia since i can remember. I have never been able to take iron supplements orally and had an adverse reaction from the IV, resulting in being forced to have IV Benadryl and steroid before each Iron transfusion. After 2 cylces of these miserable treatments, my iron levels still had not improved. I have been checked for internal bleeding and i have normal flow periods about every 3 months. Any suggestions where i can start to search next for possible answers as to why I do not absorb iron?

Tue, November 17, 2015 @ 2:27 PM

Maggie Farrell wrote:

That is so interesting bout crunching ice being a pica. When I was pregnant with 3rd and 4th childen my twin girls almost 19 years ago I continually ate ice. Around 6 mths I was diagnosed with a very low haemoglobin store count at two appts it was at around 7 then gradually returned to 9 eventually 11 ish I didn't think the ice eating was connected but maybe it was. Both my twins have terrible circulation and one I am sure is possibly anaemic at the moment.

Tue, November 17, 2015 @ 7:35 PM

Maggie Farrell wrote:

That is so interesting bout crunching ice being a pica. When I was pregnant with 3rd and 4th childen my twin girls almost 19 years ago I continually ate ice. Around 6 mths I was diagnosed with a very low haemoglobin store count at two appts it was at around 7 then gradually returned to 9 eventually 11 ish I didn't think the ice eating was connected but maybe it was. Both my twins have terrible circulation and one I am sure is possibly anaemic at the moment.

Tue, November 17, 2015 @ 7:36 PM

Nic D wrote:

Hi, very interesting to read all the comments, I have had low blood pressure, been feeling cold, tired, breathless, overheating at night, palpitations, but it was only upon going faint that I had my blood tested, I was a 9 and am now on ferrous fumerate, have still been having my cups of tea, but mixing this with Rooibos and herbal teas, after reading think I will drop my normal tea. Started to feel a bit better but overdid it last week going swimming and shopping a lot more, this week I feel very foggy headed and my worries seem a lot harder to deal with, depression is in the back of my mind, but I don't think that's the case. My periods have always been very heavy, but in the Summer got to the point where abnormally they were dropping off, thought it was pre-menopause I am 46, but now on ferrous fumerate, periods are becoming heavy again. Take Care, everyone and thanks it has been very helpful to read your comments!

Wed, November 18, 2015 @ 6:23 AM

Tammy wrote:

Wow reading this was like reading what I'm going through right now!! ICE!! Omg I can't get enough!! I continuously have a cold beverage in hand as well. I had to laugh about which restaurants have the best ice. I will choose one based on their ice 😳 I even buy bagged glacier ice because it suits my palate lol. And caffeine! I drink loads of iced tea daily and have iced coffee when we go out. My lowest blood level was 9 and I think I'm back down there again. Started up on Feramax again and already feel better. I really thought I was the only one that craves ice like that. My newer symptoms are feeling hyper or edgy even though I try not to drink caffeine after noon and really bad brain fog, so bad I have trouble carrying on a conversation because I forget words. And I cannot stay asleep. I wake at 2-4 hour intervals.

Thu, November 19, 2015 @ 6:43 PM


I have had all these same things. Hair lose all the test tues is my 2nd iv transfusion. Plase tell me where to look for reason for it instead of just doing the iv over an over. The doc dont seam to lesson much. But I was born with a life threating birth mark it is pose to devolpe malignant melanoma.

Sat, November 21, 2015 @ 2:26 PM

carol banda wrote:

is it normal for a 66 woman to have crying spells every once in awhile and I cannot seem to stop and I have not gone to the doctor I have not seen anybody about this what can I do is there any medication for it.I can not talk to anybody about this because I just start crying.please help what can I do should I go see a doctor about it

Sat, November 21, 2015 @ 2:44 PM

Angela G wrote:

hi Carol, it is not normal for anyone of any age to be crying like that. You should definitley go speak to your doctor. not sure if it has much to do with iron levels, but don't delay your visit.
I am so glad to have come across this website, thank you all for sharing your experiences.
I've been diagnosed with anemia many years ago and not paid much attention. I never followed up after completing the first course of iron tablets. I now reallise I got so used to being constantly tired that it felt normal. After a second round of blood tests my GP discovered I had low ferritin, it was 1 ( when minimum should be 20) though the haemoglobin is within optimal parameters. After 3 months of taking ferrous glutamate I started to feel better and in the morning my body doesn't feel as if I've been run over by a train during the night. I can concentrate a bit bettter when I do work, and I am a lot less grumpy. I was such a nightmare, my poor husband put up with all my mood swings. I am very foregerfull still. 
Even after 3 months my ferritin levels are not optimal though, just reached 18.5 so I have to keep taking them. I am also being sent for an ovary scan as my GP suspects it's my heavy periods that are causing it.
after reading all the other comments I am convinced this will be long process, and I am sure that several years of neglect can't be wiped off in 3 months. 
but I am really happy to see reusults for now.

Mon, November 23, 2015 @ 4:10 PM

Gloria Brockmiller wrote:

I received many many iron infusions way over 14 of them. And increased vitamin D and never needed another one !!!!!!!!!!!

Mon, November 23, 2015 @ 4:32 PM

Dawn wrote:

Have your doctor check for b12 deficiency/pernicious anemia. I couldn't get my iron to stabilize until I was treated for b12 deficiency. Remember folic acid is important as well.

Sat, November 28, 2015 @ 8:27 PM

Melissa wrote:

When my levels drop, I try to adjust my diet. This has been helpful! If you drink a lot of coffee or tea, this maybe the root of your troubles. Try cutting back and avoid drinking these items along with milk when you eat a good sour of iron rich food. Instead add vitamin C, this has helped me bring my levels up quite a bit.

Try reading up on foods that aid with iron absorption. Here is a link that may help.

I have had many iron infusions already and know that over time this can harm you. So find natural ways that will help you body if possible. 
Wishing you all great health!


Mon, November 30, 2015 @ 9:01 PM

Sandra wrote:

I am having the same problems as everyone else. . Iron extremely low.. I started taking a time released iron pill because of the nausea. . Just 1 a day, but now on 2 a day cause my levels are worse.. on top of this, I am battling asthma which the doctor said was severe. I have really hard coughing attacks and it doesn't help with all the other symptoms I'm going through, fatigue, tired all the time, wanting to just crawl in my bed when I finish cooking and after dinner (which is unlike me) I have always been full of energy and now I'm drained. I also have been dealing with thinning hair and I'm ill a lot.. meaning I snap at my husband and his dad a lot.. I don't like feeling irritable and I am fully aware of it. But my main problem is, I have acid reflux really bad and a hiatal hernia and I throw up all the time, but I'm still overweight. .. I have to struggle with when to take my pills and keeping them down. . Its rough, but I'm making it through. I do feel for everyone who is going through this.. it's no joke.

Wed, December 9, 2015 @ 9:07 AM

Kristi Mauldin wrote:

I'm so glad to find this site. The posts are so much like the symptoms I'm having. My blood pressure was 99/63 yesterday, so I am wiped out. Every time I stand up, I get dizzy. I just got bloodwork done yesterday, so I don't have my results yet. My heart just feels so irregular and I can feel it beating in my chest. It wakes me up. My hair has been falling out for months. I get migraines sometimes twice a month (not sure if hormones). It scares me to death. I am a single mom with a 3 year old, and I start to panic thinking something may happen to me. I'm just so tired of feeling so tired and out of it. This has been going on for years. The one thing I did lately is go off all gluten, so I'm not getting any fortified foods. Also, I don't eat red meat but maybe once a year. I craved it last week and after eating a steak I felt better, so I had one again today. I just pray I will get some answers and get well.


Mon, December 14, 2015 @ 11:34 PM

Shantavia Marie wrote:

Hello this help me so much I drink coffee a lot but this past year has hit me hard after baby #2 im sick like every other day sweating like crazy so weak in the morning time and thru out the whole day I just can't to sleep sleep asleep but cant and really don't want to its like my body felling me to hour exhausted but haven't did anything then I'm hot /cold hot ; cold I'm only 23 so i know its not right but thanks for making site I have to cut coffee out right away and I thought yogurt was good for you and no Wonder why I can't remember everything and always confused but thanks and god bless everyone

Fri, December 18, 2015 @ 2:16 AM

Monique Belier wrote:

Hello, Can you help me out? Iam Monique From Holland. Ive been diagnosed 2 years ago with fibromyalgia. The last months I felt very tired, and nausea, dizzy, down, raising heart beat etc. I went to the doctor and they tested my blood. My hemoglobin was 7,6 she said that was oke, but my ferritin level was 4. She taught the symptoms I am experiencing could not be only from my low ferritin level. but she gave me iron pills and I went to the internist. He said it was just maybe some tension and because I had the flew (which I never get) I was still feeling a bit tired. Iam a dance teacher and I teach about 12 hours a week. Iam 44 years old and having a busy life running my own dansschool and raising a boy. Despite my fybromyalgia (and Iam not even sure if that diagnose is right) I can do a lot, but not for the last couple of months. I could not even do one class without being out of breath. Can you please tell me if this is possible with this ferritin level and if it will go away as soon its up? Iam sort of desperate.

Wed, December 23, 2015 @ 10:11 PM

Jemima Jones wrote:

I'm 16 and I'm going to my GP tomorrow for a blood test to be tested for anaemia, I have most of the symptons for anaemia and I've been worried for some time if I had it, but I was just wondering if anyone could actually tell me the dangers of having anaemia if not treated?

Wed, December 30, 2015 @ 7:18 PM

Tammy Foster wrote:

I was diagnosed several years ago and at the time I was lucky enough to have insurance so I could receive my iron infusions at a discounted rate whuch was still high at 80% of $2000.00 a week x 8 weeks... yeah I was broke but for the first time I felt that I was truly alive. Then lost my job and never was able to find one that offered ins. anymore. Found a wonderful doctor/human that trusted me enough.(Im a registered nurse) to allow me to do my infusions at home where I could save some money but have my meds. The medicine itself is over $2000.00 plus md appt and labs as well as supplies. My anemia has gotten so bad now that I am not even able to stand up without having severe shortness of breath. Unable to try and hold a job. I feel like im dying.I am watching the signs slowly creep up on me. I hate having to depend on someone elses approval in order to get the medicine that I need. Im so scared I even tried to go to local er for just one treatment to buy me some time but was refused saying they dont do that there. Im at a loss. My vision is even being affected at this point. Not asking anyone on this site for anything other than your prayers an ear to lend and any natural easily obtainable sources other than iron supplements (have been tried on all prescription and over-the-counter medications. Only thing that has worked are iron infusions .Thankyou for letting me vent. Please email me or facebook me with any useful info.

Fri, January 8, 2016 @ 8:30 AM


Thu, January 14, 2016 @ 3:54 PM

Cookie wrote:

I am so thankful to find this I need to prove a pattern but the question I wanted to ask, is this something that can be treated. My friends sister just had blood transfusion. I really need to find her a support group she's 22 ad in living in Cumberland MD..far away from her immediate family in school great student professional anyone have a address or link I can send her she is pretty weak so we want to get the right information because she is discharged.

Sun, January 17, 2016 @ 2:46 PM

Dana wrote:

I was anemic as a baby and during my pregnancy. For the past two years I have felt extremely tired, low energy levels, lack of focus, and obsessed with plain ice cream cones. I was diagnosed with anxiety and high blood pressure. I have a child and miss having the energy to keep up with her. Nearly every symptom of low iron, I have not knowing it was anemia. My doctor did blood work to find my level was a 23. I cannot tell you how frustrated I felt the past two years not being able to do what I normally do. Truly, I thought I was just lazy. My first infusion is scheduled on Wednesday so I can't wait to start feeling human again. Low iron has held me back long enough! Thank you for developing this site. I hope each of you are able to feel relief soon.

Mon, January 25, 2016 @ 7:49 PM

Agustina Chandra wrote:

Hi.. I was diagnosed with IDA when I was 16 with Hb only 5.1 g/dl, but I have felt the symptoms since I was 11. My doctor prescribed some Fe tablets but it never helped me. When I stopped consume Fe, it became low again, always less than 8. the doctor refused to give me blood transfusion because it's risky. 
Now I'm 23 and still suffering with this IDA. I've been rejected by some companies because my Hb only 7. Make me really frustrated and jobless.

Wed, January 27, 2016 @ 7:59 PM

nicole wrote:

Dear Ronetta my name is nicole im 44 yrs old with 2 children, please help me, I have fatigue it's hard for me to get out of bed in the mornings, im always yawning, I get heart palpitations sometimes, at night Im getting rapid heartbeat and it's scaring me, Im nauseas almost everyday, Iget pins and needles on my hands and feet, sometimes my arm is numb on my left side sometimes Im light headed foggy like. I've gone to doctors but they say its anxiety, I dont think so. I exercise regularly, Im not over weight, I eat fairly healthy I don't consume alcohol or drugs, I drink plenty water daily. This is scaring me so much I feel like im going to die. Whats scaring me most is the rapid heartbeat, am I going to die, please give me some advice or what can I do for help. Can bloodwork find if I have anemia or not. Please help Nicole

Sun, January 31, 2016 @ 5:49 AM

Nancy Mora wrote:

I have been dealing with Anemia since 2013. In the last 6 months I have had 2 blood transfussions and 5 iron infussions and still no answer to why. I dont have heavy mens bleeding, its 7 days top 2 "heavydays". I had an endoscopy and colonoscopy and still and no inside bleeding. Anyone who can point me in the correct direction! We have spents tons of money on doctors testing catscans you name it! And still have NO answer im so fustrated! Please help! My doctor also just scheduled me to start another 5 iron infussions this week!

Tue, February 9, 2016 @ 10:39 PM

Keely wrote:

I had a phone call from my doctor today telling me not to worry but the results from my blood test earlier this week showed moderate anemia, I have very low iron levels and a blood count of just under 8. In 2012 I had a artery dissection (posh description for a unexplained Heart Attack) I went immediately into surgery and had 2 stents fitted to repair the artery, on admission they told me I was severely anemic, but could not have a transfusion because my heart could not cope with the additional blood. 4 years later, I am feeling worse than ever, I too have a ice addiction, where my whole family nag me to stop crunching ice, I had repeated sore on the side of my mouth, terrible restless legs at night, total exhaustion, breathlessness on walking upstairs, terrible heartburn, awaiting the camera procedure next week, to be honest I have never been so frightened, this is how I felt prior to my MI and my doctor, has suggested I start taking iron tablets????? Is he serious how long will it take before my body absorbes the iron required, certainly not before my next period due next week, when I am due, I am just waiting for the chest pains I experience to take hold like they did before and I am seriously ill again, The NHS saved my life once but will it help me again ... Remains to be seen

Sat, February 13, 2016 @ 2:26 PM

Wendy wrote:

I have had a problem with absorbing iron for a few years now. But recently I have had iron infusions I had a series of three in July 2015 and in January my levels had dropped again . I just had another series of four infusions. My original level was 48 for my iron and my ferritin was 5 my hemoglobin was good 12. I just had it checked last week and my ferritin was up but my iron was only 50!


Fri, February 19, 2016 @ 12:44 PM

kathy wrote:

I am amazed by this information. For months I have been so fatigued. Going to the Dr I am told my hemoglobin is low and I am anemic. Every time I eat, I am in the bathroom. Dr says I am losing blood. Scheduled for a colonoscopy. I end up here and read about the ice. I eat eat it almost all day. Drives my husband crazy. I just read this to him. I certainly never mentioned the ice to my Dr. Just thought it was a bad habit. What direction do I need to take. Any input will be appreciated. I am a mimi of 3 little brands and I want my energy back!

Sat, February 27, 2016 @ 8:34 PM

Jennifer wrote:

I would like to first thank you for providing this info, and yes I do feel alone knowing that I am not makes me feel better. I have not really been given a diagnosis or feel that the doctors have provided me with enough info. I am just tired of not being me so groggy,brain fog,tired and dizzy just a few. And when you are talking to people that have no idea or understanding what you are going thru seems to push things aside of me being stressed out or plain hypochondriac. Reading others comments makes me feel better in the way I'm not crazy. The doctors are going to now try an iron supplement after 5 weeks of Venofer treatments and crashing all over again down to a level 6. I just want to feel better again and feels good not to be alone!!


Tue, March 1, 2016 @ 5:58 PM

Lauren wrote:

Starting about 5 months ago, I started feeling dizzy, light headed, having racing heart and the sweats when I walked places as well as when I am in crowds or in strangely lite places. I have also felt weak, tired, and scared to get up due to these feelings. I have had an MRI with no results as to brain or inner issues. I therefore came to the conclusion that I have anxiety and have now seen a therapist. I am considering talking anxiety medication. However, after hearing from a friend who has anemia, it made me realize my symptoms are very similar. Does this sound like anemia to you?

Mon, March 7, 2016 @ 4:14 AM

Erica wrote:

I was diagnosed with Anemia as a teenager. I was put on iron pills but unfortunately, I can't keep any form of iron pills or liquid down due to nausea and vomiting. A Dr. In the ER noticed my blood levels and informed me about iron infusions. But, honestly I never took anemia as serious as I am now. I recently began to experience heart palpitations, depression and overall bad moods and it's usually around the time of my cycle. I was researching PMS disorders trying to figure out why I feel this way every month. I have a hard time focusing and I'm extremely tired all the time which I brushed off as being the Percy's of being a wife and mother of 4 with a full time job. No matter how much rest I get even away child free on vacations I can never seem to get enough rest. I visited the Dr this week to get some blood work done for Nursing school when the Dr informed me AGAIN, that I was anemic. I told her I know.. I have always been anemic but I cope well with it. She wasn't satisfied with my response and told me my blood work also shows that my red blood cells are premature which most likely indicates I am bleeding internally somewhere. NOW SHE HAD MY ATTENTION! She gave me two referrals one to see a hematologist and the other for a G. I specialist to try to identify the location of the bleed. I'm scared!! I'm lying in bed now feeling tired and lifeless crunching on a cup of ice (as always) and stumbled across this site. By reading the comments I see that all the symptoms I've been experiencing and relating them to other things are ALL from the anemia That I thought I was coping with so well. I will be scheduling my appointments tomorrow and starting the journey to getting better. Thank you for helping me realize how serious my condition really is. I don't have to feel like this, there is help and I have found it here. Thank you!

Thu, March 10, 2016 @ 9:11 PM

Tanya wrote:

Please take your iron deficiency serious. I have been severely anemic for many years. I take iron three times a day just to stay at normal. A few years ago my count went do to two. I had to be rushed to the ER. The nurse said at that point my blood was practically worthless. I was in the ER for a full day my vitals wouldn't stablize.

Sun, March 13, 2016 @ 10:21 AM

Suzanne Campbell wrote:

First of all, thanks Ronnetta, for creating this site and helping others with your story and your experience. 
To all all others, - please research your condition and don't leave it up to the doctors - they usually don't care enough, even though it is a serious condition. A lot has changed in research and treatment regarding iron deficiency. For example, the new products for intravenous infusions (that you can get in hospital on a drip in about one hour) are much much better than to have a blood transfusion (which could be very dangerous if someone mixes up the blood etc) - older doctors have prejudices against intravenous infusions because with the older products ( about 10 years ago) you could get an allergic shock - but nowadays it's much safer. You should take care and ask the nurse or doctor to give you a 'slow' infusion, meaning, over one hour or longer, so that your body has more time to absorb the iron. You will have much much fewer side effects like this. (it's just a practical issue, many hospitals just want to spend as little time with outpatients as possible, so they try to give it in half an hour) - if you get your infusion slower, you will have less nausea. (My first infusion left me very nauseaus for days, and I had a massive headache, the second infusion, same amount but more time - had no side effects on me whatsoever. I started to feel the effect of the iron in my system after about one to two weeks. I felt soooo much better and so much healthier straight away. Unfortunately my insurance doesn't pay for infusions any more, so I had to resort to iron supplements. I cannot take the ferrous sulphate tablets AT ALL, they make me so sick and I get such horrible stomach pains that I simply cannot take them. (Unfortunately they are the usual tablets prescribed in the UK. ) It's a shame that doctors don't know or don't want to know that there are much better supplements on the market - of course also more expensive, but really far better - you can order them from Amazon or any other online retailer or healthfood shop - they are called 'gentle iron' and contain Iron Bisglycinate/ chelated iron - I don't have any stomach problems from them at all. 
However, I would strongly suggest to go to a doctor who knows about 'Traditional Chinese Medicine' because they are far more experienced and knowledgeable about long term conditions like anemia. 
I hope that everyone here in this forum gets better and gets the help and supplements they deserve!
Please research your condition and don't think you cannot do anything. 
Best, S.

Tue, March 15, 2016 @ 12:28 PM


Desi wrote
I get my blood checked regularly since I've died in a car accident2011. I was anemic for some time, along with hereditary diabetic and celiac disease, all three wnt undetected for years, till now. But my anaemia reversed itself, and I can't figure out how? Email is thank u...I had another question. My kid has constipation issues. How can I undo that with out running into hospital all the time.

Sat, March 19, 2016 @ 8:29 PM

Margaret Caldwell wrote:

Ian having these problems of shortness of breath, dizzy, low energy, ringing in the ears, my iron level and folate are a little low and borderline my D3 is28 .but my Dr. Says tests are normal. I had severe iron deficiency anemia in 1991. And was treated and came back to I feel the same 31st as then, and of course I have new younger doctors, and they say I'm fine. I went to stat care, dizzy, the prescribed an antibotic, I didn't need, which tore up my stomach.then I passed a kidney stone, and now I'm on nexium for my stomach pain and I requested a ear nose throat allergist, for the ringin in my ears, which I am going to see and a thyroid Dr. To check out those problems 28th a gouiter I had.
Do you think I need a hematologist Dr. Won' t refer me to anyone unless I beg him.but I have too many lab reports that say I am borderline high or borderline low, and he says they are normal.
How do i get help.
I ended up at the hopital once. They did nothing except give me intervienous , like mandatory. After a couple hours sent me home withh. No medications.within the next 6 months I had the same thing over and over, all they said I'd I need to drink more water. The only thing wrong they said was dehydration.that's not the case either.
Can you suggest something

Mon, March 28, 2016 @ 12:54 PM

Liz wrote:

I've had anemia since I was 11 years old but it's never been so hard to manage since passed 2 years now.Ive needed up in ER with a count of 6 only to be given a shot and pills.Now it's been a 8 and still I have to take two pills once daily and I'm still having fatigue and so farth.The doctors around here aren't offering me anymore help then taking 365 mg two twice so I up it by three pills once day.Thats keeping it at an 8 no more or less.But I mentioned to my doctor about shots once a week or something and yet they still aren't doing anymore than what I'm already been doing on my own.I have an Autistic child and I'm a single parent trying to do everything and I'm feeling like a bus hits me everyday and a train finishes me off before midday.any advise?

Mon, March 28, 2016 @ 3:08 PM

Holly wrote:

Ok I've been severely anemic with super low hemoglobin for years since a gastric bypass in 2006. Recently, I had an episode where my iron levels were at their usual lowness and I fell asleep and kind of stayed that way for two or three days straight. My mom called an ambulance and they took me in pretty much unconscious. Now they took tests and released me telling me to go and see a hematologist ten days later. I've been trying to sleep but I lost so much weight so fast I'm in pain when I lay down. I can barely walk to the living room from the bedroom without getting exhausted and if I don't get my strength back soon I'm going to lose my job. I would greatly appreciate any and all advice because I really do want to get better. 

Mon, March 28, 2016 @ 5:16 PM

Stephanie wrote:

I think I've always had anemia, but it's just gotten worse since I've had kids. My periods are SO heavy. I just recently went to my Dr. who ordered an iron profile. My hemoglobin was 10, so he said I'm definitely anemic. He saw no concern with my ferritin being 6 because my iron level was at the low end of normal. After reading these posts I'm a little worried...should I see a hematologist? I realize this thread is old, I'm just hoping someone will offer their opinion!

Sat, April 2, 2016 @ 7:53 PM

felicia vuletich wrote:

Hi. Does anyone one else have extreme edema related to their iron deficiency? I had my infusion 1 week ago tomorrow and my feet are still swelling like crazy. The skin is bright red and sore to the touch. an ER Doc said it is just from the edema and not cellulitis. How long before this symptom goes away?

Thu, April 7, 2016 @ 5:26 PM

Meghan wrote:

I'm 17 now. A year ago, I started passing out randomly, and my heart was beating like crazy. Simple activities, such as stairs, running, and jumping, started to bring my heart rate up to 200, with chest pains, and pounding. The cardiologist said heart monitor showed a perfectly normal heart. About 8 months later, I got my blood drawn to find out I was severely anemic, (below a 6 i think). I was put on iron pills twice a day. Suddenly I noticed I wasn't as tired, didn't crave ice anymore, and my legs were not tingling, which I never realize could've insinuated anemia. After a month on iron, my hemoglobin was back up to an 11 and all those symptoms went away. I have also had kidney stones, which weree influenced by GI problems from the iron. Unfortunately, I have been taking iron supplements for 6 months now and my heart has not improved at all in the past year of the heart problems starting. Im planning on seeing a hematologist and another cardiologist soon. I really want these problems to go away before I go away to college next year. Has anyone else had long lasting heart problems with their anemia? Im becoming very discouraged, and I just want to know I am not alone.

Thu, April 14, 2016 @ 1:23 AM

Jane wrote:

Sadly, I think all these questions go unanswered. I have not found a thread that gives any answers. Are we just talking to ourselves? Did anyone get an answer? If so, why isn't it posted here? Thanks

Thu, April 14, 2016 @ 8:05 AM

Carolyn wrote:

Hi Meghan. Definitely see a hematologist. I have been dealing with iron deficiency anemia since 2013 it can be rough. My hemoglobin went down to 5-I had to go to the emergency room and have a blood transfusion done. Since then it has been discovered that I don't absorb iron well due to gastritis so I have to have iron infusions every 6-9 months. Its a pain but once I have them I feel terrific. Regarding the heart issue-when your iron levels start to drop heart palpitations/racing heart is definitely a symptom. I was just at the hematologist and I have been having that exact same thing happen. When my iron levels are good I don't have the issue. Your heart probably is fine it races when iron is low because it has to work harder to get oxygen to your body. When was your last blood test? You may need another. Because of your Gastrointesinal issues you may not be absorbing the supplements well and your iron stores (AKA ferritin levels may be low) I know if my ferritin levels are below 50 I have symptoms anxiety, fatigue racing heart etc. My best advice-go to the hematologist they deal with this all the time. They will be able to best direct you. Hang in there !!

Thu, April 14, 2016 @ 2:38 PM

Heather wrote:

I have never had problems with iron but found out last week mine is 7.8. My gynecologist seemed very concerned so I followed am following up with my regular doctor for bloodwork this week. I don't feel very bad, just occasionally have a dizzy spell, but otherwise feel well. My question is at this level, should I consider iron infusions if she offers that or should I focus on diet and supplements?

I also found out my thyroid is a little low. Could iron and thyroid be related?

Tue, April 19, 2016 @ 11:16 AM

Lily wrote:

It been about 3 yrs that I have been having major anxiety, heart palpitations, dizziness,fatigue and really heavy periods. In October 2015 I was diagnosed with a level of ferritin of 4. I was referred to a hematologist. He put me on 2 (325 mg) of ferrous sulfate a day. In january it went up to 18. As of April, I'm down to 1 pill a day. Fatigue and anxiety is completely gone. My period AA also returned to normal. I still have occasional heart palpitations. I went to see a cardiologist who confirmed all is well. I just have an innocent her murmur.

Sat, April 23, 2016 @ 10:56 PM

Jan cox wrote:

Just today I've had iron through a drip. Been anaemic for 2 years and was taking 3 x 200mg iron tablets per day which wasn't helping. Finally went to have iron infusion today. Does anyone know how long it will yake to feel normal again? I have a sore head and still feel weak?

Tue, April 26, 2016 @ 3:09 PM

Liyana wrote:

Thanks god im not alone. IM SERIOUSLY ADDICTED TO ICE CUBES I could crunch about 5 tray twice a day im just so addicted and i also have fever everytime it's almost my period time. I'd feel so weak and dizzy. What should i do?

Tue, May 3, 2016 @ 12:57 PM

Liyana wrote:

I've had a blood check on November last year but i still dont understand the paper doctor gave to me. The only thing he said that my hemoglobin was 9.6 and my white blood cell was 11.6 is that bad? Help im only 16 years old

Tue, May 3, 2016 @ 1:01 PM

Glenn wrote:

Hello, all! Like many of you, I’ve spent quite a bit of time reading through all these comments—So fascinating to read other peoples’ stories, esp. when they’re so similar to my own.
Me, I’m a 38 year old guy living in Portland, OR. About a year ago the symptoms of my (then un-diagnosed) iron deficiency became to intense to ignore; fatigue, intense depression, obsessive chewing on ice, restless leg, etc. The first ferritin test came back at 1.3 ng/ml, though the remainder of my numbers all looked good. Fast forward a few months of taking iron pills and eating steak all day, yet no bump in my iron levels. What gives? Backstory: About 15 years ago I lost a broad swath of my small intestines following a very complicated appendectomy. (separate story) I joke that it was a “non-elective gastric bypass.” Thankfully since then, my health has been totally fine and I’ve not really missed those 9-feet of gut. Well, that loss of intestine is what we now believe is to blame for my iron deficiency anemia. Surprisingly, there aren’t many tests that can be run to confirm nutrient uptake. I’ve had two high-dose iron infusion, which have bumped my ferritin levels only up to 32 ng/ml, but can’t seem to get them to a stable ‘normal’ level. This combo of not being able to absorb iron, either by mouth or needle, is proving to be a real problem. My Dr. and I are currently exhausting every last possible option (like testing for Tuberculosis and doing a bone marrow biopsy for example) to rule out causes. In the meantime, the infusions are the only thing that works—and they only last a few weeks. Like many of you, feeling lousy is taking its toll on my life; it strains my romantic life, hampers my social options, and basically suppresses all the best parts of me. Regardless of how my/our journey with this illness plays out, I’m sending all of my best West Coast ju-ju for health and well-being. Being sick is no fun and I hope we all feel like our best selves soon.

Wed, May 4, 2016 @ 12:07 PM

Louise wrote:

Hello all,

I have not had chance to read all your comments but I can relate to many of the symptoms listed by so many of you.

I have the irregular heart beat, tired all the time but stuggle to sleep at night etc... The thing that bothers me the most is my tongue, if it is not burning I have a horrible taste in my mouth or both. I have been told this is a symptom on anemia but I would be keen to hear if anyone else is experiencing this? 

Look after yourselves.

Mon, May 9, 2016 @ 8:44 PM

Audrey wrote:

I just stumbled upon your site as i was researching iron infusions and so forth. I was recently prescribed 3 rounds of iron infusion treatments, venofer. For the last six months I felt like my motor of life just died, my symptoms include sleeping all day, no energy, losing my hair in big amounts, weak, fatigue, high anxiety, thirstiness, itchy body, always cold, my joints hurt, brain fog - so bad that my grades started to slip, the worse habit of chewing, especially rubber, rapid heart rate, shortness of breath - losing my breath, unable to walk my house to the corner store with out my chest getting tight, etc. all this things started to affect and hinder my life and i eat pretty healthy so i was unsure of what was going on, i was withering at a rapid rate. 

I finally decided to go to the docs and my lab work came back, my hemoglobin was at a 7.4 then my ferritin at a 5, the lates lab work shows me dropping my hemoglobin down to a 6 and my ferritin at a 5, for 3 months they checked my my blood until they concluded that I'm severely anemic. The doc then prescribed 3 rounds of iron infusion treatments with venofer weekly, my first appointment what I thought went well but 20 hours later my body went into a massive shock, I woke up with my whole body hurting like a MF, like a body charly horse, to the point that I was rushed to the ER, they gave me fentonol through IV but that didn't after 5 hours they decided to give me delauded and my pain went away after a few minutes, it was the most horrific type of pain I'd never wish it upon anyone. I did my 2 round yesterday, today seems good, I did take a norco last night my body feels achey, hot but not in the same pain as last Sunday. 

Once I'm done with these treatments the doc is supposed to check my bllod again to see if any of my levels went up. My doctor also says my low levels of blood is due to heavy menses bleeding, which I'm getting an ablation to help reduce the monthly bleeding. I still think that i have a hormone imbalance that's contributing to my heavy menses. But that's another topic all together. 

I'll keep everyone posted in a few weeks as to my levels.

Warm regards

Sun, May 15, 2016 @ 1:58 PM

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Sat, May 21, 2016 @ 10:38 AM

Corina wrote:

Hello to all, I went to the ER 3 weeks ago with irregular heart beats something I have felt before. It really scared me and that was the reason for the ER visit. The ER physician told me that my iron was all it at the point where I needed a blood transfusion. And that my thyroid was hypo. I never knew I had thyroid problems. So I was instructed to take iron pills and to see my family physician for the thyroid. I also had racing heart beats after eating which was scary!! I just wan to know has anyone experience irregular heart beats it feels like a thump!? Please let me know I feel I am the only one feeling this and it's very scary. I have been to the cardiologist and he said my heart is healthy and they also did a sono, ekg all came back negative. So I am grateful all my test are negative. But at the same
Time I still feel them

Mon, May 23, 2016 @ 8:52 AM

Al Sneade wrote:

The Ferrous Sulfate was making me sick also, so what I started doing was chewing the pills and washing them down with juice. Now I can take 2 a day (12 hour intervals) and I don't get sick at all. Best to take iron on an empty stomach and wash it down with orange juice or Tang, since the vitamin C helps with absorption of the iron.

Wed, June 1, 2016 @ 7:01 AM

Lesley Black wrote:

I was diagnosed with IDA 6 weeks ago, i was given ferrus sulphate 325mg 1 per day. One week after starting the tablets i started to get all the IDA symptoms, which i didn't have previously, now after 6 weeks I'm no longer anemic but ferritin level is still omky 25, up ftom <6, so on the increase, so why do i feel dizzy most days, have tingling in my left arm and night sweats? Any advice would be appreciated

Thu, June 2, 2016 @ 3:13 AM

Chuck wrote:

Good morning, I just found out about my iron level being at 7.2. I'm a 63 year old male and in good health. The symptom that really has me baffled is the eating ice... I never liked ice up until about six months ago. The getting out of breath with just climbing stairs is why I went to the doctor and that is why she ordered a blood test. I also consumed about 2 quarts of tea daily. Quit the tea and now taking two iron tablets a day and I can not believe how much better I'm feeling. the medical professionals have ordered a scope on both ends to look for internal bleeding. Good luck to everyone dealing with IDA. Chuck

Fri, June 10, 2016 @ 4:50 AM

Joan Rintz wrote:

I am an Bariatic patient.. I've been eating ice liked it's going out of style.. for the past 1.5 years I've been thinking my sugar is low, I'm hypoglycemic, so I've gained a little weight thinking I needed to eat.. I have heart problems and it was my cardiologist who just sent me for my first iron infusion

Sat, June 11, 2016 @ 6:21 PM

Dailey girl wrote:

I feel so bad,I'm a mother of five kids and my ferritin level is barely a 5. I get so many weird pains,multiple dizzy spells, very exhausted on everything I do, I feel very helpless, I've been anemic for a very long time and just recently found out I have an heart issue due to my levels being so low rapid heart rate, I just want to scream with cries cause I feel my husband doesn't understand that this is really wrong with me. Please if anyone reads this please respond so I can feel that I myself aren't alone.... thank you....

Tue, June 14, 2016 @ 7:51 PM

Stephanie A Jiggetts wrote:

I am a 44 year old I think I have anemia maybe all my life. In 2014 I was hospitalized and had blood transfusions I have been doing fine taking my iron but I think it getting worst I am so scared. I really get some help.

Thu, June 16, 2016 @ 5:33 PM

Leigh wrote:

It took a nutritionist/eastern medicine specialist to finally confirm my extreme iron deficiency anemia. I was experiencing symptoms for two years and knew I must be anemic. Particularly because I had of "flow" for four months in a row more than once. I kept trying to appeal to the doctors that I must be anemic but after begging 4 times for a blood test they said oh you have nothing to worry about your slightly anemic. finally my husband took me to see a nutritionist who ordered a much wider panel blood testing and turned out that I am completely gluten intolerant and my iron was at an all-time low. She said she was surprised I was still walking around. My job requires me to be up late at night once in a while and even one late night or missed meal can affect my thinking, my energy, my performance, my everything…. I will say this for anyone that's new to anemia, your first instinct is to eat a lot of spinach. Or high iron foods. My husband was making smoothies each morning packed with spinach to help bring up my iron. This helped me for three months. I felt like my old self again. Suddenly I found myself not able to walk – at all. I actually had to use a walker to get around the house. I'm only 47 years old. I spoke to my nutritionist and it turns out that spinach has an acid in it called oxalate. So again if you're new to anemia and trying to boost your iron, be careful about spinach. There are a surprising number of people that have an intolerance to the high oxalate acid in spinach and some other foods. This disease has me homebound for six months due to first the inability to do the usual routine of my life and then the depression that came from not being able to follow my usual routine. I am a little bit lazy about my supplements and my iron…but I do try. And I recommend liquid iron to anyone who has been told by a dr to take iron pills. Iron pills are horrible and not very effective. This is a far more serious disease than I knew. And requires vigilance at all times. Similar to diabetes. I have learned I must sleep. I must eat right and often…I have also learned that doctors seem to be the last one to figure out the issue. My nutritionist spent two hours reviewing my blood test with me. A doctor typically spends 10 to 15 minutes and dismisses pretty much anything you have to say. These are my two cents for anyone who is new. . See a nutritionist. That changed my life. We have figured out the gluten-free food part after six months of trial and error. There are some really wonderful gluten-free foods out there and some really horrible ones :-). I hope that even my spinach advice helps one person because who knew that eating (drinking) spinach could literally incapacitate you. She told me to stop the spinach and I would feel better in about four days and I thought that sounded crazy. But she was exactly right. I know it costs a little bit more to see a nutritionist because it's not covered under insurance, but I promise it is the only thing that saved my life, my marriage, my business, my family…. The only reason I am even writing here today is because I did not sleep all night and could not believe how much one lost night of sleep affected my entire ability to even stand up without fainting. If you have extreme Iron deficiency anemia you must be vigilant at all times. This is what I am learning so I hope someone gets something out of my story

Wed, June 22, 2016 @ 8:48 PM

Monica wrote:

Thank you for the spinach information. I have been doing spinach smoothies too...yikes! I agree with a previous post. This site should provide responses to questions. Some small bits of information were helpful but for the most part I see lots of questions with no answers....disappointing.

Sun, June 26, 2016 @ 11:36 AM

Katherine wrote:


I've had a low platelet/ white blood cell count for some time now. My iron was in the range, but I had blood work done 529 days ago and my doctor called me today and wanted me to come in for a ferritin transfusion. Not even 5 minutes in I started sweating like never before,shaking, almost passed out and my blood pressure dropped to 63 over 20 something.. it was scary. Has this ever happened to anyone during a transfusion? The doctor said it was a rare reaction, but the nurse said I was probably just nervous it being my first transfusion. It seems like I've developed a sensitivity to a lot of medications over the past few years.

Fri, July 1, 2016 @ 2:16 AM

Wits end wrote:

Hi All, 

I am kind of at my wit's end to find a cure for my fatigue. For a while, D3 was giving me a lot of energy, then that wore out. At this point, I have no idea if my ferritin or iron are low. But, I did have severe bleeding for about 3-5 months, so, I'm trying iron. One that absorbs more easily and won't stop me up. I'm praying it works. Cause, like I said, I'm at my wit's end.

Sun, July 3, 2016 @ 12:11 AM

Wits end wrote:

NixieNi -

I saw your comments. I seem to have intrusive thoughts when I'm on any caffeine. Not sure WHAT they put in our drinks (soda, coffee) now, but one Coke or regular Coffee will trigger major OCD symptoms for a few days!

Sun, July 3, 2016 @ 12:16 AM

Judith Watson wrote:

I am a 67 year old woman who used to be very active. Two years ago this past Oct. I developed my first blood clot in my lower left leg. Since then, I have had 6 more blood clots,5 in the left leg and one in the right. 
During this time, I was also very weak, breathless when just walking from room to room in our small home. I was tired all of the time and not amount of sleep or rest helped. I do have insomnia, but I have dealt with that most of my life. 
So my Dr. had many tests ran. I was sent to a Hematologist who ran more blood tests. He found that I have MTHFR Gene Mutation. This could be the cause of my blood clots and suffering from chronic Migraines since I was age 3. Yes, age 3!!! He also said that I have Pernicious Anemia. He put me on a Vit. B Complex with Intrisic Factor. He also ordered iron infusions, of which I had two a week apart. I did feel better for a few months, but not normal. Then we moved over an hour away from my then current Drs. I had to start all over with a new Dr. Even though I have told her, I am not a big meat eater, iron pills make me nauseous and give me a constant stomach ache, plus they make my chronic constipation unbearable. In spite of me telling my new Dr. all of this, she still tells me to take iron pills. I am still tired, weak, dizzy, and get breathless doing the least little thing. My husband is handicapped and he needs me well. I can't keep up our small home, the meals, the laundry, and take good care of our beloved two small dogs. I only go to the grocery store when we are desperate for food. It takes me two to three days to recover one trip the the store. I rarely leave the house for any other reason, as I am just too exhausted. This is no way to live. Some of my so called friends think that is all in my head, which hurts. On top of these health problems, I also have high blood pressure, high cholesterol, chronic constipation, acid reflux, anxiety disorder, PTS, depression, of which I take medication for all. I am on 9 prescription meds, plus supplements each day. Some of the meds I have to take twice a day.
I have thought about changing Drs., but that is a hard process and I have had to do that too many times in the past few years due to insurance and moving. I want help.


Mon, July 4, 2016 @ 7:36 AM

Chloe wrote:


I was told 4 years ago that my iron level was extremely low whilst being treated for something else. My Hemoglobin count was at 4. Until reading this I was not aware that this was an ongoing thing, I thought it was just a symptom of the other thing I was getting treated for and haven't taken supplements since. 

I have come across this as I am experiencing exactly the same symptoms as you were. So tired and it can take me hours to complete one email as I just cannot concentrate. Feel weak and cold all the time but to a degree I've never known any different, just now is especially bad. Do I have to go to the doctor's or is this something I can self medicate? If so- what should I be taking and how much?

Many Thanks,

Thu, July 7, 2016 @ 6:17 AM

Debra McCormack wrote:

This is voice to text so please excuse punctuation and grammar errors but I am doing this from my smartphone not from a keyboard. I was just freaked out reading about the ice thing I did not know that so many other people had this problem or that eating ice which I have been doing like it's going out of style had anything to do with my anemia. My first batch started in 2003 when I went down to 3.5. Since that time I have had 5 additional incidences with my last one occurring this week for a total of 6 transfusions now. Reading this board which I came across accidentally only shows me that there are lots of people with the same problems and this Board needs to be recreated to give some solid answers to questions that remain unanswered for many people. It certainly is nice to share and figure out that I am not alone because quite often it seems that we all feel that way. I will bookmark this site and research others so that I can possibly reconstruct one that is more functional. If anyone knows of any better sites please post and I will come back here to check bookmarking this seems to be the only option. I wish all of the people who have posted on this site hope for the future. I appreciate the fact that someone even started this it just needs to be updated in a way that technology has caught up with it and has surpassed this website.

Sat, July 9, 2016 @ 11:01 PM

Sadia wrote:

Hi. I am female n last period continued for 65 days non stop. Had blood tests n iron was low.had an endometrial ablation.also had an iron infusion. It's 2 weeks after the ablation n still bleeding very heavy. My doc says I should still wait for 2 weeks. Didn't retest my iron levels. Will do in 2 weeks time. Feeling low n lethargic n just not myself. M convinced it's the anaemia making me feel this wY. So confused.

Sun, July 24, 2016 @ 11:55 AM

Danielle wrote:

Hello I'm 37 yrs old also a vegan and just recently got diagnosed with being anemic.I have had severe headaches and severe dry eyes also feeling really unbalanced and almost a feeling of being numb. Just horrible I have never felt so off balance and exhausted.

Mon, July 25, 2016 @ 7:47 PM

Jenette watts wrote:

Hi thank you for your page, i really took iron defiancy for granted i had it for a few years now, my lowest was 4, just recentley i started with a sore tongue and my mouth was very dry,i had headaches and felt a bit lethargic...i just lost my dad so put it down to stress or premenopause i am 52 i went to see my doctor and she took bloods and rang me up with a perscription for iron tabs as my iron was 9 i dont know about ferratin levels or any other levels to do with iron i didnt realise how dangerous it can be to your body with so little iron, people just pass it over as if its just like having a sopt which will go away.....
Jeanette UK

Thu, July 28, 2016 @ 3:11 PM

stephanie wrote:

Hi my name is stephanie i have a ferritin level of 1306 and no one can tell me anything I have had trafushion in the past but it's been 8years almost my other irons are normal but my hemoglobin is low I've been to four Dr's and no one can tell me nothing but that I have aquired hemolytic anemia maybe yall might know something thanks

Thu, July 28, 2016 @ 5:07 PM

theresa wrote:

What if the problem is not just one thing like low iron. How do I find out if my doctor don't want to refer me to cardiologist due to my insurence or one ekg test. When I walk I feel like I am ting to move a elaphants with me drowsy all the time tired short of breath my heart races or feels like it flutters sometimes sleep is what I feel like doing all the time but don't want to sleep want to be active again outside or inside I wanted test for heart disease but can't get cardiologist I'm a non smoker 160 pounds 5 foot 7.anemic and eat good and eat lots of protein salid ect

Fri, July 29, 2016 @ 5:39 PM

theresa wrote:

What if the problem is not just one thing like low iron. How do I find out if my doctor don't want to refer me to cardiologist due to my insurence or one ekg test. When I walk I feel like I am ting to move a elaphants with me drowsy all the time tired short of breath my heart races or feels like it flutters sometimes sleep is what I feel like doing all the time but don't want to sleep want to be active again outside or inside I wanted test for heart disease but can't get cardiologist I'm a non smoker 160 pounds 5 foot 7.anemic and eat good and eat lots of protein salid ect

Fri, July 29, 2016 @ 5:41 PM

Dottie wrote:

I had pica and was so tired and short of breath one day my whole body started spasming went to dr had to be transfused with 4 units of blood had several iron treatments for several months now I have one every month for three years ... 
My ferritin level ranges from 15-19 with the monthly iron infusions one
I was diagnosed with Celiac Disease and have followed the Guten free diet for three years now . I thought if I cut out gluten that I would heal and begin to absorb iron again however my hematologist says may body will never be able to absorb iron and I will have to have monthly if not more frequent iron infusions the rest of my life.
I'm 59 ....
Have you ever heard of this?

Mon, August 1, 2016 @ 4:35 AM

Danelle wrote:

I'm so grateful for this site. I'm 53 and for some years now have experienced very heavy periods due to an 8cm uterine fibroid that I refuse to have removed ... I know someone who had a stroke after a hysterectomy and is in a wheelchair for the rest of her life, so such an invasive surgery is frightening to me; also, SURELY, since I'm a month shy of being 54, periods are going to stop at some point, anyhow ... right ? My hope has been to just hold on and not have surgery and let nature take its course. I suffer constantly with fatigue and depression, and eight months ago, after being diagnosed with anemia due to this bleeding, my doctor put me on 325mg of ferrous sulfate. Within a few weeks my intestines had turned into concrete and I couldn't pass stool. It backed up and, in straining to "go," I developed my first, and I hope last, episode of diverticulitis - which was almost as painful and a hundred times more scary than giving birth, au naturel, to my daughter 16 years ago. So I quit the iron supplements, began drinking coffee to make myself regular, and haven't had an further episodes of diverticulitis, though as the months have gone on, the fatigue has gotten worse until three weeks ago, my Restless Leg Syndrome was so very bad that I was up the entire night, unable to sleep.
Back to the doctor I went, and this time he ran more blood tests. The comments here quote numbers, so I'm not sure which one I'm supposed to reference, but here are mine: hemoglobin: 10.5 (normal is supposed to be 12016?) ... iron serum = 26 (supposed to be 35-150) ... mean corpuscular hemoglobin = 23.8 (supposed to be 26-34). I have no idea how "bad" I am with these numbers, but I know I feel like crap. My doctor put me back on iron supplements - ferrous gluconate, this time, and for the last three weeks I've been taking 27mg of it. It turned my stool black and began leading to constipation again ... coffee won't move things, and I can feel the tugging pain in my left side that is a warning that the diverticulosis is there and just looking for an excuse to flare up ... constipation is all the excuse it needs. I'm about to drink a second cup of coffee to try to "go" ... the enema I tried the other day didn't work and Colace isn't doing much, either. I'm scared.
So, my question is this ... are there any forms of iron supplementation that do not cause constipation and gut issues? Ferrous sulfate and ferrous gluconate are no-gos for me. I've upped my spinach intake, bought a bunch of roast beef and liverwurst, and am hoping for the best.
Many thanks,
-- Danelle

Wed, August 3, 2016 @ 2:31 PM

Abi wrote:

I found this website after getting discharged from the hospital. My haemoglobin levels were at 8.4 and they acted like I would die in the next hour if I didn't get a blood transfusion. I felt perfectly fine but they insisted I was in danger and admitted me and gave me 2 pints of blood although now I feel kinda woozy after the transfusion. 

They gave me a prescription before they discharged me and when I went to the pharmacy, I discovered they didn't prescribe any iron supplements. I was under the impression you still need to take iron supplements after a transfusion. Just doing more research now to get on top of this and find out all I can about it and how to manage it.

Wed, August 3, 2016 @ 7:20 PM

Sannesea wrote:

I have been feeling very weak and dizzy I have to lay down somtimes for this feeling to pass I do have a habit to eat ice somtimes I even feel hot mostly in my feet I hate this feeling I have to remain inside am afraid to get out of the house because of this feeling

Sat, August 6, 2016 @ 9:14 AM

Madeline Espinoza wrote:

I can relate to all of you. I have been with IDA for about 5 1/2 years. I worked in a Clinic and felt like I was going to pass out and the ER told me I had Thalassemia B trait. My Hematologist blamed it on my period but the worse part is my iron drops while I don't have it. I've had colonoscopies and EDG's done... You name it. I'm allergic to the iron and even had a blood transfusion that I had a bad reaction to. Today my Hematologist informed me I will be going once a month to have infusions done. I have to be pre medicated and people think I can cure myself just like that. It is depressing and I feel like know one understands but Thank God I found your site. I have changed my diet and nothing has worked. I only start feeling better after 8 weeks of infusions then I still need another 4 weeks more... Then after 3 months the cell dies and we start all over again.. I asked my Hematologist what the worse case scenario..she said I could end up on Dialysis from having infusions. May you all feel well soon.

Mon, August 8, 2016 @ 10:45 PM

john spradlin wrote:

I've been taking 325mg daily ferrous sulfate daily, doctor prescribed, (my oncologist) for about a year, and I feel like I have a constant fever, I feel unusually warm, I've having to turn up my air conditioning to avoid sweating, which is a waste of money, so I'm stopping them.

Tue, August 9, 2016 @ 9:30 AM

REFILWE wrote:


Tue, August 16, 2016 @ 8:26 AM

Kristina wrote:

I'm really scared, seven months ago my doctor tested me and she said my iron was very low that I needed to take liquid iron. Well now I went back and she said it's even lower then before that I have to start infusions. I know I need them Im just so very scared. I mean I'm sick all the time, I have no energy, I have a thing for eating soap, I know that sounds crazy, it feels crazy to say. Ugh. I'm just wondering if maybe I'm scared for no reason? And I really can't saying anything to my family cuz they are worried and have to tell them it's all okay... lol backwards huh.

Wed, August 17, 2016 @ 6:11 AM

Brandy wrote:

Are there any long term effects on the brain from an iron deficiency that has been untreated for too long? I have problems worj concentration, focus and find it difficult to grasp and new tasks.

Wed, August 17, 2016 @ 4:22 PM

Katie wrote:

I don't just want to comment, I want someone to seriously answer this. I had gastric bypass and I get Iron infusions. My ferritin is dropping and not improving. Saturation is terrible. Hemoglobin improved and hit right above normal, but I have NEVER had ferritin drop after treatments. These are 400 dollars a POP and I don't like paying for them just to see a drop in Ferritin and MORE hair fall out. Anyone else have this issue??? We need to communicate if it is something particular to gastric bypass. I am NOT absorbing this expensive iron infusion and I am eating ice like crazy and TIRED!!! Don't just scroll down. Please someone give feedback. We are everywhere asking this and the thread closes or no one answers. We need to help each other.

Mon, August 22, 2016 @ 6:12 AM

Shari wrote:

I'm so glad to have found others who are coping with the same problems caused by anemia. I've felt like I was loosing my mind. I'm so tired I can barely get out of bed, and then I need a nap by noon. I've become addicted to caffeine as my only way of having enough energy just to make it through the day. Until I started researching anemia I didn't know all my other symptoms were also caused by the anemia. I've had lots of headaches, insomnia, muscle cramps, restless leg syndrome, heart palpitations, shortness of breath, exercise intolerance, pallor, dry itchy skin, frequent illness...I could go on...but I'm just so glad that I started my weekly iron infusions today! Hopefully I'm on the road to wellness!

Mon, August 22, 2016 @ 6:01 PM

lucy wrote:

Hi Everyone ..great to read your stories ..i was diagnosed with severe anemia two weeks ago , my blood level was 6 very low . Just so grateful that it has been diagnosed and my constant fatigue and shortness of breath has been explained . On a positive note I've now been taking ferrous fumarate 322 g twice a day for just over two weeks and also upping my meat intake ..didnt really eat red meat before chicken and fish yes ..and am beginning to feel like a different person !!
I have consistent energy that gets me through the day and my body feels strong , walking up stairs yesterday without feeling i was going to have a heart attack felt miraculous . Waking up and not feeling exhausted ..just so happy to feel normal after years of wondering what the matter was . Good luck to everyone on your journeys

Sat, August 27, 2016 @ 4:56 PM

Joanne wrote:

Hi, I was low on iron when I was getting my 2nd born in 2009. I was given some iron tabs and doc didn't explain anything. I breastfed my son for three years. I'd go through dizzy spells, breathless, fatigue and insomnia.countless visits and tests to the hto the hospital yielded nothing.two months ago I was so cold, freezing actually on a day that was so heart was racing.all the joints in my body ached. I couldn't put on any rings or fingers and wrists were actually painful, and my feet so sore. I went to hospital and the doc recommended a HB test. It was Ferrin was 4.2. from 20mg of iron tabs, I was put on 200mg twice a day. I have also given up my fav beverage, tea and occasional glass of red wine. I felt like my world ended.i couldn't lift duvets off the beds, was huffing and puffing doing the lightest chores, running out of breath from only carrying my handbag from the car .. permanently tired, irritable,and wanting to sleep throughout, I now feel so much more energized.
I hate the tabs that I have to chew so the doc changed them to some chocolate coated ones.
I go for my Ferrin test in a few days..keeping my fingers crossed that I am doing better.
Hope all of you well...learn how to take care of yourselves to be able to take care of others..the docs words.X

Sun, August 28, 2016 @ 2:51 PM

Lorene wrote:

I have had iron infusion twice now over a years time. But it keeps going down why is that? I'm deeply seeking info I feel as if I'm fading away. Ty
Sent from my iPhone


Wed, August 31, 2016 @ 4:27 AM

Jorge wrote:

I'm reading everybody's comments and can relate to them. But i'm a guy and don't know where my red blood cells are going to. Could my diagnosis be different? I've had 2 iron infusions and got 2 units of blood at the hospital. My shallow breathing, tiredness, continues. Everyday I take liquid iron, emergen-c, both mixed with orange juice. Don'the know that it's helped any.

Wed, August 31, 2016 @ 3:25 PM

Jorge wrote:

I'm reading everybody's comments and can relate to them. But i'm a guy and don't know where my red blood cells are going to. Could my diagnosis be different? I've had 2 iron infusions and got 2 units of blood at the hospital. My shallow breathing, tiredness, continues. Everyday I take liquid iron, emergen-c, both mixed with orange juice. Don'the know that it's helped any.

Fri, September 2, 2016 @ 2:16 AM

Kiran wrote:

Hi everyone,my name is kiran(girl-24y/o),as far as my story goes my hb is fine and my ferritin is @ 16. My b12 is insufficent. My symptoms are profuse sweating, breathlessness, fatigue, headache, brain fog, no concentration. I have been to many doctors they do a blood test and send me home saying i am just weak and will get better. Now literally i feel like i am dying everyday even to do small tasks. I am on ferramax and floradix. I do take vitamin c -500 mg with my pills. This is taking a big toll on my relationship as i do nothing but sleeping since 2 years. I am performing poorly at my job. My doctor even on request wont do any infusions.

Fri, September 2, 2016 @ 1:09 PM

Kiran wrote:

Hi everyone,my name is kiran(girl-24y/o),as far as my story goes my hb is fine and my ferritin is @ 16. My b12 is insufficient. My symptoms are profuse sweating, breathlessness, fatigue, headache, brain fog, no concentration. I have been to many doctors they do a blood test and send me home saying i am just weak and will get better. Now literally i feel like i am dying everyday even to do small tasks. I am on Ferramax and Floradix. I do take vitamin c -500 mg with my pills. This is taking a big toll on my relationship as i do nothing but sleeping since 2 years. I am performing poorly at my job. My doctor even on request wont do any infusions.

Fri, September 2, 2016 @ 1:10 PM

Siobhan wrote:

This site is a great help! For the last 8 months or so I've been so tired and dizzy that I can't function. My brain is foggy and I can't remember the simplest of things. I'm trying to work full time but I have zero patience and am finding it extremely hard to do my job. I was diagnosed with depression years and years ago and I've seen four doctors in the last couple of months who all passed it off as just being from depression. I have been so sure that something is going on physically but it's impossible to get doctors to listen! I finally saw a doctor who, while she was certain it was just the depression, ordered a bunch of blood work to be on the safe side and lo and behold my iron levels are 6. I have no clue what my ferritin is at! I honestly just laughed after I got off the phone with the doctor. It's a relief to know that there is something wrong and it can be treated. I actually only found out yesterday that that was the problem! I've been told to take iron pills (300mg a day). How long does it take to get things back to normal? I can't afford to take time off work but it's getting to the point where I'm unable to look after my client well enough because I'm so disoriented by exhaustion!

Fri, September 2, 2016 @ 7:20 PM

Breanne Porsch Wilken wrote:

Hello, your article is wonderful. I was also diagnosed with anemia as a teenager. I am a 23 year old mother of a beautiful 4 and a half year old girl. For the past few weeks I have experienced all these symptoms as well as finally managed to pull myself to the doctors today to see what was wrong. He did a blood test and we are waiting on the results. It's Friday and I probably won't get anything back until mid week next week. Curious if fever and chills could also be a symptom? It comes and goes, mainly at night. And I sweats too. I was a heavy coffee drinker and definitely enjoyed a few cups of red wine before bed. I stopped doing all that when I started feeling very ill 3 weeks ago.

Sat, September 3, 2016 @ 12:58 AM

mrtmeo wrote:

My mom's iron was 16 for years.
After getting the last 2 mercury amalgam fillings out, her iron shot up to 68.
Dr Hal Huggins explains this when the same thing happens to interview host, Patrick Timpone

Sun, September 4, 2016 @ 10:58 PM

Ella wrote:

I have fatigue and brain fog, which has lasted for weeks. It could be gluten, but it could be this too.

Mon, September 5, 2016 @ 10:11 AM

Maya wrote:

Hi all. My name is Maya. I am 26 yrs old and my Ferrtin is @28 and my B12 is @ 210. I have severe sweating, easy fatigue, brain fog, no tolerance to exercise, muscle cramps, leg pains. I have seen many doctors and after my blood work they say i am perfectly fine and need to eat and sleep on time. I have been like this since 1 year i am on Ferramax and vitamin b12(1000mg, sublingual). I have no improvement since then. I sleep almost 14-16 hours per day if i am not working and @ work i am always tired. I cant even do simple tasks like walking i feel really ill and feel dizzy. Please help me out. Do i have to get tested for anything else. I am in normal thyroid range.

Wed, September 7, 2016 @ 4:50 PM

Kristina wrote:

I have been sufferrind from Anemia for a while now and it was even discovered before I had my 2 daughters. Its gotten so bad to the point I black out from the dizziness in the past. When I habe taken my iron supplements it actually makes me more dizzy and gives me headaches. I have talked to my doctor about it but they can't figure out why thats happening. My periods ever since I can remember have been very heavy and painful. I have had a bunch of ultrasounds to figure out what the issue is, but they leave my gynecologist puzzled when everything comes back normal. I try to eat an iron diet as much as possible and try to exercise when I find the energy to, but its very hard to find the energy. I also am addicted to caffiene by energy drinks because its the only tjing that helps me get through the day without feeling dizzy and getting head aches all the time.

I used to donate blood all the time, but I cant do that anymore. My doctor told me that by taking iron supplements and eating an iron filled meal before I try to donate I should be good, but every time my levels are checked I'm still too low even taking the supplements. I was taking 3 supplements a day and still my levels were 10. The lowest I have seen my levels were 6 or 7. My husband has noticed that my memory isnt the best. I didnt want to believe it to be true, but now I'm starting to think he is right. I also eat ice all the time. In particularly I craved ice when I was pregnant with my oldest. I still crave it all the time. 

My heart rate is always up and my breathing is always weird. My husband is always asking me if I'm okay because my breathing doesnt sound right to him and my resting heart rate is always consistently in the 100s. I never understood it. I hope you could give me some answers or advice on what to do. This is so miserable.

Wed, September 7, 2016 @ 7:01 PM

Joanna Biggs wrote:

Hi all,

I got diagnosed with Anaemia a few months back.. my god I feel awful every single day. Even if I get a good sleep an hour after waking up im falling asleep again, I get dizzy and loss of appetite. Its hard as I work full time in an office and half the time I just want to go to sleep.

I get headaches every day and the dizziness drives me nuts.
I feel very alone, because no one really gets it.
Im always cold then hot, I just want it to stop and have a normal life. I am literally forever tired.

Please can someone help me as I have to cry sometimes as I am so fed up.


Mon, September 12, 2016 @ 11:21 AM

sonali wrote:

Hi all , I have been diagnosed with anemia. I used to sleep all day and still feel tired, fatigue, sweat too much, pressure on eyes, leg pains, no tolerance to exercise, walking.kept myself awake on caffeine and drank almost 4-5 cups of coffee a day. I suffered for 4 years and doctors brushed it off saying my hemoglobin is normal and only problem is my RBC. Low MCV and MCH. Low ferritin-12.B12-190. I was on Ferramax for 1 year and it did not help much. Tried floradix which helped a little. 

2 months earlier i found a solution. 

I started to do my research and finally this helped me out
Energizing Iron-I take 6 pills a day(Iron content is 8mg/2 tablets, liver source)
I take orange juice and 1000 mg vit c with my iron pills
Stopped all coffee(i don't need it as i feel awake)

I don't say i am completely perfect. I do get exhausted, but i don't sleep as before. 

I hope it helps.

If any has low ferritin, as in my case it can cause all the symptoms of anemia. Best level is atleast 70.

Mon, September 12, 2016 @ 6:09 PM

marius wrote:

Help feel like giving up...I had a tripple bypass in 2009.then 5 stents.up till 2012.all clocked up.dr can not open it up.Dr say my heart are very sick.lot of smaller vine.s blocked aroun my heart.I am a diabetic inject up till 3 times a day.high blood.tresss.i lost 2 brothers.54.and 59..heart...i am 53.feel like giving up...thanks for listing..

Thu, September 15, 2016 @ 8:55 PM

Alisha wrote:

I have been anemic for years after my gastric bypass. I have a transfusion 4 years ago in the last month of pregnancy with my son. It lasted about a year. And then one fatal day I looked at the ice in my cup and it was over. I have six children and a disabled husband. I have recently stopped working and feel like I'm going down hill. Like others most iron makes me so sick and I have no insurance. I got a cold about 2 weeks ago and it starting to scare me. I'm weak heart racing chest hurts headaches mind is foggy. I haven't been to the doctor since I delivered my son as I lost my Health insurance. Any ideas or suggestions I can try I'm at the end of my rope and can't afford to feel this way as I have 7 counting on me. By the way I'm up to a 20 lb bag of ice every other day.

Wed, September 21, 2016 @ 12:15 AM

Terene Reddy wrote:

Hi There

2.5 weeks ago my Gynae ordered some blood tests as I was concerned I was getting sick quite often with flu symptoms and lack of energy. A year ago she did the same tests and said I was slightly anaemic and should take an iron supplement which I did (especially during my menstruation cycle ) although not religiously daily.
This year my Iron results were 7.4 with Transferrin 2.8 ; % saturation 11 and Ferritin 29. My doc then prescribed Spatone (Liquid Iron) and my Vitamin D at 9. I never quite realised but I could never stand the taste of Fish Oils and Iron tablets. This year I had the flu 3 times with chest pains ; cold shivers; sore bones (I scream blue murder if my kids poked my bones) ; cramps; leg pains; dizzy spells / weakness (I thought this could be pressure / diabetes related) ; and motion sickness as I cannot put my head down in a car. I have suffered with tummy issues last year with scopes showing no issues.
I have felt like a nag constantly complaining to my family that I am sick and no energy to attend to my 3 kids. My husband is very supportive but I am afraid I am stressing them all out especially with them having to take over my household responsibilities.
My gynae also put onto a contraceptive pill to manage my hormones as I break out into huge pimples on my face at 36 years of age with painful period with excessive bleeding.
She has suggested an ablation but I am reluctant to go for surgery. This is now playing with my emotions. So its either I am tired / edgy / tearful / suffer with headaches and I need to deal with this and fast as its not fair on my family and I need to get my energy levels up again for my exams in 4 weeks. I cannot even shower without feeling tired thereafter and needing to rest for a but. My legs are constantly pins and needles. Can anybody suggest a quick fix without having to consult more docs as my medical aid funds are exhausted for the year.

Sun, September 25, 2016 @ 10:39 AM


I was told I was anemic a few months back but was given a iron pills off the counter and was told that would be enough. Now, I'm at a point where I just couldn't take it anymore. My anxiety was killing me. I felt super depressed and couldn't sleep or bare being awake because of the way I feel. I just had iron transfusion yesterday and am waiting to see if I feel any better. Just feeling super super tired today and my whole body aches.

Tue, September 27, 2016 @ 3:38 PM

Frances in Italy wrote:

I'm also very happy to have found this forum :) My sincere good wishes to all sufferers out there. I had no idea my Ferritin levels were scarily low until I passed out last year (luckily at home). I'm 50 now but have had heavy periods all my life and have been strict vegetarian for 35 years - so I suppose that my Ferritin has slowly been depleted throughout my life....or maybe not! I was always a sickly kid and missed a lot of school so maybe I've always had this problem but nobody realised or investigated me enough.

I had Hep C for at least 20 years (maybe longer as no idea how I got the virus) and since I believe Ferritin is mostly stored in the liver this might have contributed to a lack of being able to absorb/store Ferritin from food. I had a course of iron and my Ferritin levels did improve but since my other iron levels are ok the risk is that I'd be getting too much iron.

I was lucky enough to receive one of the latest Hep C therapies this year and - fingers crossed - I've been clear since August and although my other Iron measurements look fine the Ferritin remains below the minimum so of course I'm being sent to an Iron specialist (in November). I will update after my visit, when I hope to know why the Ferritin is low and how to increase that without increasing the other iron levels.

I have suspected for a while that I might possibly have Celiac Disease as that can hinder absorption even though other vitamin and mineral levels seem pretty fine. I'f I get myself tested for CD I'll update on that too.

My main symptoms - always tired, some difficulty catching my breath, lack of concentration.

Sat, October 1, 2016 @ 2:35 AM

Ana Klim from Europe wrote:

Hello to everyone and a big "thank you" for sharing experiences and tips. I would like to ask those who wrote earlier, if you are still coming to this page, could you share how you feel now? Is there any progress to the better? WHat helped? I start believing that this IDA is a thing that will never cure in myself... Thanks to all contributers and for this page!

Tue, October 4, 2016 @ 5:51 AM

Jules wrote:

Feeling like I could sleep for ever. Iron level 2, hgb level 95, I've just had my first iron infusion 14hours ago, still very lethargic and dizzy, how long before I will feel normal and look normal again. I look like a zombie white with panda eyes.o h I am taking transexamic acid to stop uterine bleeding and clots.

Tue, October 4, 2016 @ 7:18 AM

Joi wrote:

Thank you for this informative site! I was recently advised by my gynecologist that, due to massive fibroids and extremely heavy bleeding for two weeks out of the month, I am anemic (hemoglobin - 8.8), and should have an iron infusion. I have an upcoming appointment with a hematologist at the end of next week, and I will hopefully start the infusion process soon. 

You made a good point when you stated that "Women, especially those of us who are moms, are so busy running around taking care of everyone and everything else in our lives that we all too often neglect ourselves." I know many moms, and am awestruck by the massive responsibilities you have, and everything you have to "handle" and achieve in your families. However, I would like to also suggest that this statement applies to women, in general. I have not been blessed with children, but I am also very busy with the demands of work, taking care of older loved ones, and many other responsibilities, etc. :)

Thanks again for such a necessarily and encouraging site. It indeed feels good to know that I am not alone!!

Tue, October 18, 2016 @ 12:44 PM

Priscilla wrote:

Hello, I am 3 months pregnant and have once again been diagnosed with anemia. I throw up everything, even water! My heart races at times, shortness of breath, feel like I'll pass out all day long, no appetite because I can't keep anything down, even iron pills and nauseous all day with headaches. My hemoglobin is at a 9 right now. I'm so weak and have 3 sons youngest being 1. I need energy/ help please! Thank you so much!

Fri, October 21, 2016 @ 9:46 AM

anika wrote:

Hi everyone I am 24 years old and have been dealing with ida for a few years now the first time I was diagnosed my iron was at 4% and hemoglobin 8 I ended up getting iv iron and felt horrible after I guess they said my nerves were dying and when u received iron they woke back up and cause pain it's been a year and now im back to square one my iron say is 7% and im in severe pain my body feels numb aches and pains headaches confusion chest pain I feel like my familythinks I'm crazy

Mon, October 31, 2016 @ 2:52 AM

Julie wrote:

Reading about these comments touches the heart. I have had problems with low iron levels and anemia since I was a baby I never ate animal produce and was a poor eater with not much appetite, when I was a kid.
I suffered with panic attacks very frequently and had all the usual symptoms. The only time I felt really really good is when my periods stopped for a number of years. I took to doing body-building and for the first time started to eat chicken and fish I had an abundant of energy. after a few years I stopped bodybuilding and not long after my periods started,6 months later I had a baby boy. Ever since giving birth I have felt pretty horrible most of the time I went vegan then on a raw food diet I had numerous blood test over a few years and it always came back anemic and low ferritin and now over the last 6 months i have been experiencing a very terrible feeling in my heart as if its about to fail or is really strained. I get panic attacks,anxious, my eyes always feel like closing,shortness of breath, irritated,sleepless leg syndrome,insomnia,and just recently hair loss. Its been the heart feeling and hair loss that's really got me to take action and do every thing I possibly can to turn this around I know I will.This is early days and I know in a few months things will be good. I am now taking ferroglobin 30ml per day
I have just started to eat chicken liver and will get beef liver, I am now having molasses brewers yeast, I am basically getting and eating as much iron and protein foods as I can each day. I read in a book that with low iron levels you also need protein and lets not forget ferritin is a protein that stores iron.I hope that we can all try to eat good iron rich foods with vitamin C and get enough protein and all the other essential nutrients we need. I wish every body an easier path and i really hope you all feel much better very soon. Sometimes we need to slow down and listen to our beautiful bodies there always trying to tell us something but we rush and never take notice until it feels bad.Wishing you all the very best.


Mon, November 7, 2016 @ 2:40 PM

Beia wrote:

Hi! Im so glad im not alone in this. I too have IDA diagnosed last year & it was due to my heavy periods caused by my blood thinner. (I suffered stroke 2 years ago & have to maintain this type of meds) I do have similar experiences with a lot of you like suddenly feeling faint, cold & clammy, shortness of breath and palpitations. I was given iron supplements for 2months & iron shots every 2 weeks for 2 & 1/2 months & thankfully my iron level returned to normal again. That was about 10months ago. Now i'm feeling the same symptoms again and it really is frightening. I just had my iron test again and just waiting for the results. Im just glad i found this site. It's reassuring to have a community who understand how you feel.

Tue, November 15, 2016 @ 5:47 AM

Vicki wrote:

I'm speechless at the moment. heart is full of emotion. So thankful I found this site. Ill type more in a moment but I have to decide where to begin and how much to say. Very emotional right now to know that I'm really NOT ALONE and NOT LOSING MY MIND!!!

Wed, November 16, 2016 @ 12:13 PM

Karen Hollowell wrote:

I just read many of your comments. Mostly there were a lot of you that don't know what to do. All oncologists are also hemotologists. I go to a hemotoligist. They know their "stuff" and you will get the right treatment.
For those of you that do not have insurance that will cover the charges or have the funds valuable, then you might consider going to your county hospital ER or to a county medical clinic. They have good doctors and can help you get better.
I recommend you do not give up, this will not go away by itself. Good luck.

Thu, November 17, 2016 @ 12:03 AM

Jayah wrote:

I am a 16 year old girl, in need of extreme help. My iron level is at 7 when its ment to be over 40... for the past three months ive felt nausa 24/7 and i went to the docters for a blood test and she told me shit all. now its been four days ive been eating nothing by spiralina, greens, carrots, spinach pasta and water and i cant stop feeling so incredibly sick it sucks because its schoolies week now and i cant even walk 3 meters. I went to the docter for another blood test yesterday but i am so so sick and i hate feeling like this it hasent gone away just got worse! someone please help me with getting this sick feeling again. PS i do take anti biotic for iron and healthy iron oral supplements nothing is working.

Sun, November 27, 2016 @ 2:49 AM

Kristen wrote:

Hi. It is good to know I'm not alone. On Monday, I had my first iron infusion. It is now Wednesday and am still very tired and get worn out easily. Can anyone tell how long it takes after an infusion before you feel better? I am still craving ice as well. 

Thanks Kristen

Tue, December 6, 2016 @ 4:50 AM

Amber Smith wrote:

My iron level has been low for the past year. It's at a 23 now. I have Raynaud's s and my doctor says my iron pills may not absorb. So she thinks I need to get an iron iv. I've been so busy as my job is an in home daycare provider. I just don't know what to do. Please help. Always want to chew ice and have been drinking ice tea and hot tea daily several times a day.

Wed, December 7, 2016 @ 3:30 PM

Carolyn wrote:

Kristen it will take at least 4 weeks before you start to feel a difference.

Mon, December 12, 2016 @ 3:54 AM

Lucky wrote:

Hello Everyone..hope y'all are healthy and happy

Please please please please please please please please HELP ME!!!!!

My name is lucky but i have no luck in my life, as i am ill most of the time.

Please tell me if low iron and ferritin can cause all these symptoms.

Unable to tolerate heat. Head sweats and night sweats
Leg cramps
Worst pms , to the point i look pregnant.
Leg cramps, foggy brain and no energy.

My life is falling apart, my relation is coming to an end.
I literally have no energy to do anything. I sweat if i step out d any activity.No doctor seem to understand my situation.

Ferritin: 22ng/ml
Iron:79 ug/dl
TIBC:325 ug/dl

My worst symptom is the sweats which make me look like i am about to die.

Please help me..Let me know if something has helped you...

Sun, December 18, 2016 @ 12:54 PM

TJ wrote:

I like many others here are suffering from absolute anemia because of the menstrual bleeding and the hematologist seems to only subscribe Iron IV if the levels are really low. I have been exhausted and burnt out and borderline suicidal for almost a year because of the lack of energy and I can't seem to get past this. I feel like I have no brain power and have lost my life because of this. I can't do much or accomplish much and I get burnt out so easily. I fought really hard and can't seem to get past this. I don't know what to do. The hematologist says that the blood work have to show that my store are lower than what 12 for insurance to approve it. It seems that I'm stuck in this vicious cycle and get get stronger. My hemoglobin went from 7 to 12 after Iron IV so the hematologist stated that the insurance won't approve another, even though my menstrual bleeding is excessive and had to wait another 3 months with really low energy until the blood tests showed a hemoglobin drop from 12 to 10 and she ordered new Iron IV but my Ferritin stores now are low again went from 20 to 12 and my iron levels are even lower than before the first Iron IV, they were 22 and now they are 16 so the hematologist ordered the Iron IV and I am feeling absolutely exhausted today and extremely low in spirits that I did before the Iron IV. It's a really vicious cycle. I wish there is more help on this. Why are women and menorrhagia and their treatment so ignored by the medical industry. I want to get better and feel strong and the health industry seems to be working against this. I had to do so much research before and push before an MD did more blood panel work. I passed out couple of times and had a blood level of 7 from my bleeding and the emergency room released me without any help and ended up passing out again. We really have a lousy medical care dictated by insurances. I'm sorry I'm ranting of but I would like to find some legit help

Sun, December 25, 2016 @ 3:01 PM

Carolyn wrote:

TJ have you seen your gynecologist ? Could you be put on depo shot to control bleeding. I have been suffering from ida since 2913. It's horrible. All gastro issues have been ruled out. I do have small fibroids and adenomyosis they think it might be the cause. Gynecologist put me on depo shot. Seems to be working so far and my levels staying relatively good . Hang in there I know it's hard

Mon, December 26, 2016 @ 7:07 AM

MAIZA wrote:

hello my name is Maiza I am 35 years old and I have my anemia level at 6.4 my obg doc is super concerned with this she said it super dangerous and that she wants to check if something is wrong with me that I am not producing red blood cells but I did get the bypass done 1 year ago I think that has a lot to do with it I need help on getting my iron back up I am also trying spirulina and I am taking iron in liquid but it doesn't help with going to the bathroom. I need guidance with this asap

Fri, January 20, 2017 @ 9:33 AM

Queen wrote:

Very happy to find this site. Just had my first infusion Monday & three more to go. So far fatigue, nausea, & diarrhea have been side effects. I've been wondering why I've felt more tired than before the treatments. Now I know.

Wed, February 1, 2017 @ 2:41 PM

Gretchen wrote:

I felt exhausted my senior year of college. I couldn't focus on my school work. I felt foggy all the time. My heart was racing for no particular reason. People would ask me questions however, it would take a while to respond. I started having day mares and nightmares. I felt like I was on drugs.

I would shiver in my room, my teeth would chatter. I would take 5 showers a day because they warmed me up. 

My handwriting was sloppy. I could barely get through a book. I couldn't remember what I just read.

My family kept telling you need a plan and a focus yet I couldn't focus.

What was wrong? I didn't know until one day I went to an urgent care clinic with a Irritable bowel syndrome - I had some discomfort. After running some blood the Nurse Practitioner, on duty, told me I had anemia. She told me to immediately start taking a vitamin supplement containing iron. 

Its been just a couple of months. I'm starting to feel much Better!

Moral of the story don't tell yourself you are becoming depressed. Go see a doctor. 

I'm glad I went in.

Fri, February 3, 2017 @ 9:23 AM

Josephine Bolger wrote:

I have recently been diagnosed with anemia. I have always had low iron from 10 years old right through to now at 39!! I have been on my iron tablets for the past two weeks now and honestly I didn't even feel this bad before I took them! As I am trying for a baby I went to the doctor and had bloods done, before this i had no symptoms as I normally would. Since I have started taking them I have pains in my legs, i feel exhausted, I can't make a decision (even just trying to plan whats for dinner can leave me in tears or very angry). 
yesterday was a very bad day, I woke up in a panic about housework (it was my day off work) so i jumped out of bed and cleaned for a few hours (all the while my heart was racing) eventually I had a shower (first of 3 yesterday as i was so cold) then went out to do the grocery shopping which took me 2 hours as I could not make a decision about what I would do for dinners for the week, which caused more heart racing. Then went to walk the dog with my husband but because he walked in front of me I cried, then my heart started racing and then I got angry with him. Can all of this be just from low iron? 
I feel so low the past 2/3 days. Does anyone have any advice?

Wed, February 15, 2017 @ 6:26 AM

Mimi wrote:

Just received my bloodwork results......iron 22 and ferritin has NOT contacted me yet, I just read the results online. I have NO energy, dizzy, foggy brain, and migraines more frequently. I am 52 so I attributed the headaches as getting old and going thru menopause. I feel terrible and weak. I went to the doctors because I keep getting migraines and got lost coming home at night from a bible study. Scary. It sounds like I am going to need a transfusion after reading some of your comments. Should I be concerned since I travel for my job. Will this affect me flying on a plane, I have to travel next week to West coast? HELP

Fri, February 24, 2017 @ 6:01 AM

Kate wrote:

I have been anemic my whole adult life due to loss of blood monthly. I hit rock bottom with hashimotos and anemia when I was pregnant with my second child 7 years ago. I had my first iron infusion 6 months ago after bleeding for over two months straight due to my monthly and a bursting ovarian cyst. After the second night I woke up with sharp shooting pain up my left back and shoulder, shortness of breath, chest pain, numbness and went to the hospital thinking I was having a heart attack. Thankfully that was not the case and I was having a severe reaction to the iron assimilating in my blood. After day 4 I started feeling much better, more energy, better moods and continued feeling better and better after my next infusion 7 days later. After 6 months and more blood loss I am back for another round of two iron infusions. My triggers were aching, throbbing joints, fatigue, extreme anger, intolerance and frustration. I am feeling better after 4 days of my last infusion. I have another in 3 days and I can't wait. These infusions have been a life saver and I am getting ready to book a hysterectomy to stop the loss of. Look and bring even more balance to my daily life. Anemia alone and or coupled with any other condition is a horrible. I am still amazed that my doctors did not pick up on my iron levels while pregnant. I was so depleted I could not walk up 3 stairs without sittting down. I am grateful to have finally experienced some relief after having iron infusions. My journey to daily wellness is just that. A daily practice. Put yourself first because no one else can do it better!

Tue, February 28, 2017 @ 9:25 AM

Carolyn wrote:

I agree that very few doctors warn patients of the potential seriousness of iron deficiency anemia. When I was first diagnosed, I was told that my iron was low and that I should take iron pills and warned that the pills could cause constipation. The doctor said it all so casually as if it was no big deal. I wasn't told that I should have my iron levels checked regularly. I wasn't told that iron is better take Vitamin C (some iron pills have it inside the capsule). I wasn't told I could get highly fatigued, suffer from brain fog, get hair loss, heart palpitations. Nonetheless, not long after being simply told to just take iron, the fatigue set in. It probably took about a year for the tiredness to begin and then eventually full-on fatigue and brain fog, too. The later of which I didn't even realized because it crept up on me. Till this day not one doctor I've seen acts as if it's a big deal at all. Also, no matter my iron levels, even when I followed the iron therapy and nearly obtained normal iron levels, at no time did the fatigue wane. I truly felt no better on iron therapy than off it. The result was that the fatigue and brain fog impacted me academically. I didn't major in what I wanted to and I made mistakes in the quality of the degrees that I've obtained. That was the biggest, life changing impact for me, more so than the significant but temporary loss of hair. The impact it has had on my success in life is definitely secondary to the hair loss that I suffered for about three years. Anyway, once I started to take Iron with Vitamin C (versus without Vitamin C) for better Iron absorption and also the Zinc to help ease the terrible PMS symptoms that I developed over time as my Irritable Bowel Syndrome (IBS) worsened, did my hair loss stop. I don't know if one or both (the Iron with Vitamin C and zinc) helped end the hair loss, because I started the two things at the same time. So, for any IBS people out there, note that if your IBS is not well-controlled, you will experience nutrient loss, including that of any iron supplements taken whether it's iron or not. I take my Iron with Vitamin C at bedtime; iron is also better absorbed on an empty stomach, if you can tolerate it. I take 3-4 capsules a week and step up the dosages before my period and continue to do so for at least a week after it ends. I probably should take it every night and at least two times a day during and right before and after my period end. So, I'm admitting I still don't take as much iron as I should because like I said it's never curbed my fatigue. I'm just trying to keep the heart palpitations and hair loss at bay. And yes, iron deficiency anemia, if bad enough will impact one's ability to regulate body temperature. There's many a night that I've gotten in bed and shivered or was somewhat cold to only wake up 4-6 hours later hot or even sweating. After at least 25 years of suffering from iron deficiency anemia, I've only discovered two things that have ever curbed my fatigue, and those two things are Prednisone and Vitamin B6. I was on the Prednisone for a problem with chronic coughing. I noticed the difference right away when I began taking Prednisone. I felt awake, alert, and alive. Prednisone made me discover that I was not only fatigued but my brain health was affected by the anemia. Since I was no longer in touch what it was like to feel normal, I had no glue how much the anemia affected my mental health and ability to think with alertness. Prednisone rewarded my mental health and abilities although I'm sure I was still anemic as usual. When the course of treatment ended, I was soon back to my some old self fatigued, sleepy, exhausted, and mentally foggy. Like I said I never know I was so impacted mentally. Anyway, I ended up on Prednisone once again and sure enough, I felt great again. I can't adequately describe the difference mentally but it certainly existed. So, I researched this about Prednisone and found that maybe Vitamin B6 could help in the same way that Prednisone did. So, I still don't have normal iron and blood cell levels, but I no longer feel sleepy and my ability to focus due to good alertness is realized through Vitamin B6 just the same as it was through taking Prednisone. Please note, Prednisone can be addictive and cannot be taken for prolonged periods of time, so don't go asking your doctor for it, but Vitamin B6 might help you. My doctor doesn't believe in pyroluria, she didn't seriously entertain that I might have this. Also, the established normal ranges for the urine test that determines if one has pyroluria may be too narrow for some people to be incorrectly told that they don't have pyroluria. I've read one can have it but the test will say they don't and one CANNOT have started supplementing with either Vitamin B6 and/or Zinc prior to taking the urine test for pyroluria. Pyroluria is a lack of available amounts of Vitamin B6 and Zinc for use by the body as needed. So, my additional advice is to try Vitamin B6 for the fatigue, determine if you want to explore the possibility that you may have pyroluria, which worsens anemia, and make sure your IBS is as well-controlled as possibly if you suffer for that as well. Also note, I've read that a Vitamin B complex or a Vitamin B6/B12 combo is not affective for everyone, so I'd try the Vitamin B6 only capsules if you have problems with fatigue.

Thu, March 2, 2017 @ 7:52 PM

Jennifer wrote:

Hi. I was severely anemic when I was pregnant and breastfeeding both of my kids which is also the only times that I had ever been tested. I tried a few different kinds of iron but they all made me so sick that I thought I would prefer to deal with anemia than to deal with the side effects of the pills. I am now 44 and it's been over 16 years since I had my last child. My periods are HORRIBLY heavy. I asked the lab to test my hemoglobin when I was getting a routine blood test for the sleep med that I'm on. It was low (10.4 so not terribly low). I went back 3 weeks later for something unrelated and they did a bunch of blood work and dr. also wanted to test iron. I was still at 10.4 and my iron was 35. I have a lot of symptoms but the thought of taking the iron is horrible. Actually after the 1st test I tried some prenatals with iron and got really sick. They have ordered an infusion for me and I'm very nervous about it. What have your experiences with the infusion been? I'm just so exhausted and so tired of being tired. I hear my heartbeat in my ears, once in a while get dizzy, have insomnia. I do have a lot of pain in my back but don't know if it's related. I'm hoping that I should not be so worried about the infusion. I have to do something. We do have a lot of heart disease in the family too.

Sat, March 4, 2017 @ 4:44 PM

Suzanne wrote:

I've been sick for so long, it started in April 2016 with chronic gastritis. I was never told that the bouts of dizziness or shortness of breath could be due to low iron from gastritis. Was more tired than usual all summer, then in August had a constant sore throat and waves of not feeling well, like I was coming down with the flu. ENT scoped my throat and told me it looked like silent reflux and suggested I read a book called "Dropping Acid". I did this, and started cutting out things from my diet; dairy, meat, gluten, sugar.. You get the picture. I lost 30 pounds very quickly. My symptoms started getting worse. Felt like a had a lump in my throat for awhile, chest pains, upper back pain near my left shoulder blade, trouble getting a deep breath, shakiness, high heart rate but low bp, constant low temperature, intolerance to cold. So many more symptoms, pretty much feeling like death. I had my gallbladder removed after tests showed it was bad. Still felt very ill. So many tests, so many doctors. Was told to try psychologist, I did, he just made me feel worse, mindfulness, I did it, meditation every day, Valium, Ok, it helped me sleep a little better, but still felt horrible. Now my shoulders and arms were hurting, and hip. When I looked back through all my bloodwork I could see a few signs, low hemoglobin one month, low RBC one month, but my doctor just didn't seem to think it was anything to worry about. Finally a naturopathic doctor suggested I have my ferritin looked at and found it was an 8. She put me on Ferrochel and I went back to a normal diet and have tried eating all high iron foods. Adding in Floradix too. In three weeks my ferritin is now at a 19 and I'm just starting to feel a little less like death now. The anxiety has lifted, I can breathe easier, no more shakiness and heart palps. Still have shoulder pain and getting an MRI tomorrow to see what's up with that. The worse doctor I saw by far was a hematologist who didn't even know what Ferrochel was and said that my symptoms are not from low ferritin?????? Hmm.. Heart doctor said, you're fine, just add more beans to your diet???? Hmm.. Private physician said, there's nothing wrong with you, it's all in your head???? Hmm.. Husband said, it's just perimenopause, you'll get through it???? Hmm.. 
When I'm completely well (and I'm hoping I will get there soon!), I plan on educating a lot of doctors in my city on what the symptoms are of low iron. We shouldn't have to go through all of this just to get answers.

Sun, March 5, 2017 @ 4:23 PM

Suzanne wrote:

Jennifer, I could hear my heartbeat in my ears too, forgot about that symptom. The iron supplement my naturopath put me on is called Ferrochel, it's Ferrous Bisglycinate. It's very easy on the stomach and does not cause constipation. Floradix you can get at the health food store, it's liquid iron but is also easy on your stomach. Both are vegetarian based. Even though it's easy on the stomach I still take the Ferrochel after a meal and take it with OJ. The Vitamin C will help it absorb better. Also start eating high iron foods, I just found out that Total cereal is the highest of all cereals (it's got 100% iron!). I eat Rice Chex, Cream of Wheat, steaks, clams. Watch out for spinach, even though it's high in iron the calcium can block the iron. Also, you can try some black strap molasses, organic is best. I've put a tablespoons of that in cold water and drank it down. So far I'm getting my iron stores back up, slowly but surely. You need to take care of your heavy periods, you don't say how old you are, but maybe bc pills would help? This is definitely why you are feeling low iron. Hope you feel better soon, and let me know what happens if you get the infusion! XO

Sun, March 5, 2017 @ 4:54 PM

Suzanne wrote:

Oops, just reread and see that you're 44. Sorry about that. You've got to check with your GYN to see what you can do about those heavy periods.

Sun, March 5, 2017 @ 4:57 PM

Lisa E wrote:

I actually just completed a round of iron infusions. I don't feel any better at. I do t know where to turn. If I sit down, I'm out cold for at least an hour. Just made appointment with my gastroenterologist b/c I'm due for a colonoscopy. Aside from that idk where to go next? Hematologist? It's like my body just doesn't absorb the iron. I'm tired even when my numbers are good

Mon, March 6, 2017 @ 6:54 PM

Anna wrote:

I as well have anemia, my ferritin level is 7 and has been the same for the past two months. I have spent a lot of money on iron supplements that don't work. I have many symptoms associated with low iron : feeling tired, out of breath, feeling cold, odd feeling in my feet, pale yellow skin. However my biggest two symptoms are : insomnia and this odd feeling in my head. It only happens when I am almost sleeping. The best way I can describe this feeling as it's similar to hiccup but inside my forehead. It doesn't hurt, it doesn't last, but it slightly uncomfortable and wakes me up from my sleep. I get about 20-30 of them each night, taking ambien helps to quickly fall asleep and avoid feeling these "head hiccups". 

Is anyone else having these strange head zaps? I never had them before I was diagnosed with anemia. The lower my ferritin level, the stronger and more frequent they are. 

I can handle being tired and out of breath, but these head sensations I cannot stand. My doctor wants me to start taking almost 1000mg of ferrous sulfate per day for the next six weeks to increase my ferritin level. In six weeks (if not successful) I will be scheduled for my first IV infusion. 

Best of health to everyone! Stay strong!

P.s I am not on any medications or have I ever been. I only take iron supplements

Tue, March 7, 2017 @ 9:52 PM

Lisa S wrote:

"Head zaps" and hot flashes -I have had iron deficiency anemia for more than 15 years. I used to get a round of infusions 1-3x per year. This controlled all of my symptoms but I was never able to return to any level of exercise. I feel that the infusions never really gave me a normal level for long enough. I now have a new hematologist that doesn't seem to believe in iron infusions and my lab values and my symptoms have worsened. Since no longer receiving infusions in the past few years I too have these "head zaps". When the zap occurs I can hear a crackle within my head. It's a bizarre thing that goes in spurts. It seems to worsen when all of my other symptoms are bad. I have never addressed it with a physician. However, I have noticed that all of my symptoms seem to have now improved with added COq10 to my supplements. COq10 helps give energy to your cells. I take Solgar's hematinic formula for my iron supplement since a nutrition specialist told me it is absorbed better. I also believe that I feel better when I take Spirulina regularly. 

I too have suffered from severe hot flushes and looking for answers. I am post menopausal and do not believe these have anything to do with menopause anymore. It's very strange to be extremely hot on one part of your body and freezing on another part.


Mon, April 10, 2017 @ 5:10 PM

Elizabeth wrote:

'So glad this site is here. The denial in the medical community regarding low iron is staggering. After years i begged my GP to get me in touch with someone for IV infusion therapy. I am supposed to start tomorrow afternoon. 

And there is so much research now on the endocrine system and iron deficiency anemia. Even the hematologist I am seeing said he doesn't know of any relationship between thyroid function and iron levels. A brain and hormone specialist in California noted (Mark Filidei, DO contributed to a brain research book) that ferritin has to be over 90 to have the endocrine system function correctly.

But if this hematologist is willing to get my ferritin above 40 with IV, I have read that my hair should stop falling out. 

Does anyone else lose hand fulls of hair? I don't wash my hair everyday. I think i wouldn't have much left...

Wed, April 12, 2017 @ 5:55 PM

Mya wrote:

Hi All,

You don't know how glad I am to have found this website. I have recieved more information and assurance from your stories then I have ever got from the medical profession. No one takes IDA seriously - to be fair neither did I. I've had it since I started my periods at 14. However, in the last few years, probabaly due to IBS it has got to the point where I can not function. I have breathlessness, headaches, light-headedness and dizzy/vertigo spells, hot flushes, blurred vision, aches and pains, pins and needles, nausea, loss of apetite, fatigue, sleepyness, anxiety, heart palpitations, chewing ice, half head of hair loss (thankfully thick hair to begin with) - all at the age of 26 I feel close to 100 or the walking dead. 

The problem is due to by Ibs I can not tolerate any form of Iron other than kids chewable vitamins which are not helping much and am scared to be infused due to the side effects of nausea which I have already due to reflux. I suppose I may have to bite the bullet and go down this path because as I sit here and type I have no idea how I am going to get through the rest of my work shift and quite expect to lose my job over this. I have a constant cloud over my head and can not concentrate nor am I motivated to do anything anymore which is incredibley strange for an over achiever like myself. My employer is not very happy.

I wish you all the best on the journey to health.

Permenantly exhausted
Mya x

Sat, April 15, 2017 @ 11:47 PM

Felicia wrote:

Hello, I just happened across this site. I just have a few questions. About 6 months ago I was having very heavy bleeding. This was not something uncommon for me but it became more than it had ever been. I finally got an appointment to see an obgyn but before I even made it to the dr I passed out in the shower. I literally felt and thought I was dying. He got me in that day and ended up wheeling me to the ER from his office. They gave fluids and I started feeling much better. They also started taking care of the bleeding issue but after about 3 weeks anxiety came on so strong. I felt like I was literally going crazy. I finally went to a family dr who did blood work and found out that my iron was crazy low. He actually said it was one of the lowest he had seen. He then started me on regular iron tablets three times a day. I began feeling better and my levels within about 4 months went back into the way normal range. However, I have had so much go on since then. After those few months of feeling normal, I had a sudden burst of anxiety, almost daily. Then symptom after symptom started happening; freezing cold I get sooooo cold and my whole body shakes uncontrollably. And I am such a hot natured person. It got to where I was having anxiety attacks almost every other day, headaches, aching muscles, pains in my chest and arms, and now the worst one is my trembling hands. This is not related to the cold, just when I'm trying to do something like cut or write or type. I went back to the dr and he is sending me to a neurologist. Of course this does not help my anxiety, he mentioned wanting to rule out MS or a brain tumor. Which scares me to death. My question is...could this be related to the iron??? It just seems weird to me that all of this coincided with the iron but isn't related?? I am going to the dr in one week but I would just love your input...someone who has actually been through it. Maybe someone can relate?


Sat, April 29, 2017 @ 8:14 AM

Carolyn wrote:

I can certainly relate to you for sure. I have suffering with iron deficiancy anemia since 2013. I have had every test imaginable. We finally think we have narrowed it down to fibroids/adenomyosis. I have always been an anxious person but when all this stuff started happening with my iron/anemia my anxiety went through the roof! Its horrible. I find that when my ferritin drops below a certain level is when the anxiety peaks. It sounds like you went to an OB/GYN. My advice to you is to make an appointment with a hematologist before you go through those other tests. My experience has been that while your hemoglobin may increase with iron supplementation it takes MANY MANY months for your iron stores to build up again. It sounds like yours were pretty low. A hematologist will run more in depth tests for the anemia . They may do an iron infusion which will bring up your ferritin level. The ferritin test is typically one test that a hematologist will prescribe. Mine actually uses this to guage when I need an iron infusion as my body doesnt absorb supplements well. I can tell you from personal experience that once my ferritin levels are increased my anxiety reduces DRAMATICALLY! I hope this helps. Best of luck to you.

Mon, May 1, 2017 @ 11:25 AM

Carolyn wrote:

Mya-don't be afraid of the infusions. I have had many of them and have no side effects other than mild achiness the next day. The infusion my hematologist gave me was injectafer. You will feel so much better afterwards!

Mon, May 1, 2017 @ 11:55 AM

Felicia wrote:

Thank you Carolyn for you advice. I will look into it the next time I go to the dr. I would really like to know if you ever experienced the hand tremors with any of this. That is by far, what is making my anxiety levels so high at this point. I did go to the neurologist but he basically looked at me like I was crazy as well as my dr. for sending me to him. He thinks it is all anxiety based. He is trying to get the insurance to let me have an MRI just to rule out anything, which I am praying for. I just want some peace of mind!!!

Tue, May 2, 2017 @ 12:42 AM

Aine wrote:

It's such a relief to read these comments, I've suffered on and off from low iron but from anxiety too, in the last months I've had awful light headed ness, tingly in my hands and face and lips, adrenaline rushes to my head that make me go clammy and heart racing and such awful tiredness and crying so easily. 
I had been diagnosed with thyroid nodules and bloods normal so doc wouldn't give me anything and I asked for print out to check thyroid levels myself and saw that my ferritin was at 12! This all made so much sense but I'm angry that my doctor said all was fine as 12 isn't optimal level and my hair loss and lightheaded feelings all point to iron but she didn't even pick it up! I'm going to go to the chemist to get iron today, I used gentle iron before but it only has 35mgs so would it be ok to take 2 a day or along with spatone? Thanks


Sat, May 6, 2017 @ 8:59 AM

Carolyn wrote:

Felicia to answer your question no I have not experienced hand tremors with my anxiety however I have experienced many of the others you have described. Ive had one of my hands and feet feel cold, chest pains, palpitations you name it. Your mind can make your body feel many different sensations. The scariest for me are the panic attacks. If it makes you feel better get the MRI.I went through a period of time when I basically was a hypochondriac! Im learning that not every body sensation is something bad. Again Im going to suggest you see a hematologist for a thorough iron workup. I have my family doctor, Gastroenterologist, OB/GYN and hematologist working together. Its just now after 4 years that we seem to be getting to the bottom of it and again I can tell you my anxiety peaked terribly when something was going on with my iron. Hang in there-I know its hard.

Tue, May 9, 2017 @ 10:33 AM

Carolyn wrote:

Aine with a ferritin of 12 its going to take you forever to build up your iron stores/ ferritin level. I myself dont absorb iron well so I need infusions. Most people are able to do iron supplements just fine. When I first started all of this and they didnt know I didnt absorb iron they prescribed for me ferrous suphate 325 mg 3 x per day! Its always best to check with your doctor first however. Remember this is a LONG process with supplementation. Have you asked your doctor about possible iron infusion instead? It will build up those levels in a matter of weeks. My hematologist will tell prescribe an infusion for me anytime my ferritin is below 20. Once your iron stores are depleted then it could affect your hemoglobin level which may cause you to be anemic. Thats no fun either...Ive been there! Best of luck to you!

Tue, May 9, 2017 @ 10:45 AM

Marcia Coller wrote:

7153472670 I have it and I go in about every 6mos and sometimes sooner for Iron Infussions. I have been dealing with this since 2010. I have to have my blood ched in June but am sure I need it done by the way I am feeling so I will call my Doctor tomorrow.This is a great site and glad I stumbled across it.


Mon, May 15, 2017 @ 11:24 AM

Kegan Garvey wrote:

Hi Ronnetta, first of all, I am sorry to hear about the struggles you went through. I found your blog to be very insightful about anemia. I have IDA myself and I found it extremely interesting about how when you like to munch on ice, it may be a severe sign of IDA. I never knew that! I like to chew on ice a lot and I found this to be very interesting. The rest of your blog was very fact-filled and it helped that you put your story alongside it. This article made me realize how serious anemia can be.


Carolyn wrote:


I'm feeling really down. After 4 years of struggling with IDA I am no closer to figuring out why. My hematologist and gynecologist disagree on cause of anemia. I get infusions my levels go up only to go down again in 3-4 months. I don't absorb supplements. Infusions only thing that will temporarily bring up levels. It's like a band aid. Made an appointment with another hematologist at big educational institution for a second opinion. Maybe he will see something my current hematologist didn't. I'm feeling sad and defeated. Is it possible they will never find out "why"?? Anyone else in similar situation?

Sat, May 20, 2017 @ 6:55 PM


Maryanne Kelly Agius wrote: so glad I stumbled across this page.I had a iron level of 5 then the next week 1. I pretty much crawled to the Drs as I was so tired, dizzy, heart racing,nausea, headaches and passing out. He arranged a colonoscopy and iron infusion over a week ago now. All went well though found a polyp/small tumour in my intestine and I get biopsy results this Wed 7th June.Day after infusion I felt even worse! Like I'd been hit by a truck! I was very anxious and couldn't believe how I was feeling.Tonight over a week later and I'm still feeling fatigue, nausea, dizziness and the worst headaches ever. I dropped by a local Dr tonight, not my usual Dr as He was not rostered on, but he said I may need another iron infusion.Im feeling very scared and at witts end..i just feel so sick and being a single mum with an autistic child, I fell even more worthless. Could someone please suggest anything please...i do not wish anyone to feel this way. Has anyone else experienced this.. x

Sun, June 4, 2017 @ 11:50 AM

Carolyn wrote:

Maryanne-It's great they found that polyp now.As far as the infusion you really won't feel anything right away. What type of iron did they give you because most iron treatments are at least 2 or more. The headache and fatigue after infusion is normal. I get the injectefer infusion and it's usually about 4 weeks till I start feeling better and the red blood cells are being generated. It does take time especially if your levels are very low. Are you seeing a hematologist too? Believe I know it's hard. Try to hang in there and get rest as much as you can

Sun, June 4, 2017 @ 5:58 PM

Kate wrote:

My hemoglobin came back at 6.5 and I've had an iron infusion, feeling more tired than before. My symptoms before were racing heart and getting out of breath.
This strange thing happened the other day where it felt like I was suffocating, like breathing with a pillow over my face or there wasn't enough oxygen in the air, I opened a window but that didn't help. My fingers also felt quite tingly.
My doctor hasn't done any tests about why I am anemic. Also my levels were fine in March.
I've read some people getting transfusions at hgb levels of 7 or 8, should I have got one?

Sun, June 4, 2017 @ 9:15 PM

Carolyn wrote:

Kate-My hematologist told me they typically do a blood transfusion when level gets below 7. When this all started with me my hemoglobin was 5.9 and I was admitted to the hospital and got a transfusion. At your level of 6.5 it could have gone either way. With your iron infusion you should start to see a difference and your hemoglobin go up in about 4 weeks. Im sure they will be doing another blood test to check your levels. Best of luck to you!

Mon, June 5, 2017 @ 10:26 AM

Melody wrote:

I'm fifteen and my mom said I was looking really pale and I was always tired so we went to the doctors and my iron was at like a 3 and the doctor was just like "that's not good" and he gave me some liquid iron stuff that tasted nasty by the way, but ya my mom says when you have an iron deficiency you get a craving for ice and I know I've been sucking that stuff back like crazy so I think I should maybe visit the doctor again because ya I am pale again and I read a symptom could be cold hands and feet and I have that all the time yikes.

Wed, June 14, 2017 @ 1:32 AM

meshack wrote:

i feel your about the struggles you went through. I found your blog to be very insightful about anemia.

Tue, June 27, 2017 @ 6:18 AM

Rini wrote:

I have anemia and taking iron pills from last month.. But I am so weak and unwell and depression about my health that I can't even explain.. I don't have energy to do anything don't have any happiness and nothing... All the time I am thinking what's wrong with me... And when I will be happy and fit like I was before ... Is that only iron deficiency anemia or anything else? I have also back pain from last 2 months.. Its little decrease from last 3 days .. I don't know what to do.. I also lost my appetite help me

Thu, June 29, 2017 @ 4:57 AM

DD wrote:

hi Rini, have you done a full bloodwork (ex.full iron and thyroid panel) to rule out any other problems with your health. Ask your doctor to run full panels and see. Don't give up. I know what it feels like to lack energy and feel depressed. Having body pains is common with anemia. Try taking unsulphured blackstrap molasses its a good source of iron, magnesium, b vitamins, and calcium.

Fri, June 30, 2017 @ 9:39 PM

Alicia jones wrote:

Ive been on ferrous gluconate over 30 days im still not feeling so days good some poorly..I wonder if this ferrous gluconate is enough i take 240 mg tablet once day..Should see my doctor again.I'm very concerned

Wed, July 12, 2017 @ 8:38 AM

Channa wrote:

I could have written the description of your symptoms. I laughed at the whole ice thing I carry around two double insulated cups full of ice and I too can tell you where to find the best ice. My boyfriend was actually teasing me about it this morning,he doesn't understand the why behind it. Me either for that matter I know what it is...what I do know is I gotta have it.

Thank you for sharing I am glad to have found this site. I had gastric bypass and several bowel resections so I no longer can absorb oral iron in any form. I started with iron infusions in 2002 and in 2006 I had an anaphylactic reaction. Not fun
The then switched me to blood transfusions but they were starting to get concerned that I was having to many and my start developing antibodies that would preclude me from getting more. So today they tried a different form of iron and so far no reaction...yea. This means I don't have to wait so long to be treated. I get way symptomatic before my hemoglobin does to levels for blood transfusion.

Again thank you for sharing. It's really hard to help people understand why you can't take a supplement or eat more iron rich foods. 


Wed, July 12, 2017 @ 9:59 PM

Lisa wrote:

Great information, thank you! I got my own life back when I finally had an iron infusion two months ago. After this time, I need another one as my ferritin has gone down to 93 which for me at least is way too low to function correctly. I don't have any internal bleeding, I just do not absorb iron. Do not delay having iron infusions if you realize that food alone or iron pills don't help you.

Thu, July 13, 2017 @ 3:35 PM

Kimberly wrote:

I'm glad I found this site. I started feeling horrible about 2 years ago. I would have these serious dizzy spells and my heart would race to the point that I thought I was having a heart attack. I found myself eating a lot of ice and I also noticed bruising on my legs. Other than ice I have not had any cravings to eat non food items but I LOVE the smell of wood, a dusty room and the smell from my car A/C. Yes, ALL very strange! I had no idea what was going on until I finally saw a doctor for the bruises and it was discovered that I am anemic. She wanted to do iron infusions but insurance would not cover it. I was then forced to take iron pills. I started to feel a little (not fully) better and was able to resume my workouts, but now I'm starting to feel horrible again. I am eating ice more than ever and I'm tired and lightheaded all the time. Basically walk around with a cloudy head. This past Friday when I got home from work I had to take a quick nap before date night with my husband. Unfortunately I woke up 6 hours later. I was only awake for an hour before I was sleepy again. I hate this feeling! I'm usually a very active person and this is definitely interfering with my workouts. The thing I hate most about it is the confusion/cloudiness I feel. Especially at work. I honestly feel like I could die any minute. Today I made an appointment to see a hematologist. Hopefully I will find out what is causing this deficiency and get some help.

Mon, July 17, 2017 @ 3:58 PM

Pamala Neel wrote:

Hey there. I'm so glad to have found this website! Most people don't understand what it's like to deal with this. I have found my self in tears and at my wits end trying to cope with this for the past 15 years! Just this year I found a Doctor who suggested iron infusions. However my insurance will not cover them! My iron was so low last week I had to have a unit of blood. Thankfully my Doctor has worked out billing where I can pay a some a month in order to get my first two iron infusions. I'm scared. Not really sure what to expect. Again I am so thankful to have found this site.

Wed, July 19, 2017 @ 3:27 PM

Kathy wrote:

I'm 64 and am extremely anemic. I had a bout of this 15 yrs ago. They gave me infusions, 1 a week for six months and then 2 blood transfusions. I bounced back fine and was good until 2 years ago. I got up one morning and was so dizzy that I fell. It seem to get better and I got very dizzy again landing me in the hospital. My iron level the lowest that the docs had ever seen. It was 2. They gave me 3 infusions and sent me home. I had an appointment with a hematologist. I ended up having 2 infusions every three months for a year and a half. I then asked a friend who was a holistic doctor if there was anything natural I could take. She had me take Metagenic Hemagenic iron pills. I couldn't take regular ones as I have Crohn's disease and it tore up my stomach. I've been able to maintain my iron somewhat. I had two infusions at the beginning of the year and have been ok. I've always been very hyper and energetic. Out hiking, biking, and exercising 4-5 days a week. I now have no energy, tired all the time, joints hurt, short of breath, palpitations on and off, nauseous and have gained weight that I can't get off. The newest side effect is being hot all the time. With any exertion at all, I start sweating. It's like having a constant hot flash. There has to be something natural that you can take to get iron levels up. My doctor never told me about any of the side effects. I read that the infusions can damage your kidneys and liver. Help!!

Sun, July 23, 2017 @ 9:06 AM

Dena wrote:

Thanks for creating your site. The information is helpful, but I need some advice. I was diagnosed with CLL (Chronic Lymphatic Leukemia) in May and then about a month later, diagnosed with Anemia. CLL can "activate" anemia. I had an iron infusion June 29th, but still feel awful. I'm even tired of telling my husband how bad I feel everyday. My doctor said pills and injections don't really work for extreme low iron levels, therefore I needed an infusion. I take a B12 pill everyday, but still feel awful. I've been told I should feel better 3-4 weeks after the infusion, but I don't. Any suggestions?


Sat, August 19, 2017 @ 8:16 AM

Heather wrote:

My iron is at 4.2. 
I am celiac so not sure if that has effected my absorbsion? 
I've been recommended iron injections twice a week and oral medication. But have heard that they not advised and can leave a scar? Should I do the drip instead?? 
Many thanks

Tue, October 3, 2017 @ 5:19 AM


Ice, Ice Baby: Iron Deficiency Anemia and Pica (Eating Ice or a Non-Food Item)